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anyone have arnold chiari malformation

Spine Health | Last Active: Apr 15, 2012 | Replies (20)

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@judyhobbs

I have a chiari and I have some strange things happening to me, that I think might be related to it. I'd like to ask others if they experience similiar to mine. One very disturbing incident was just as I strained to use the bathroom, the pressure in my head was unreal...I lost all control (my equilibrium) I was almost incapacitated for 2 hrs. My husband called 911 & they took me to the hospital, where I was had a ct scan to rule out stroke, an ekg, and blood work. Nothing was revealed by the test & I told the er dr. about having a chiari; so he said that might have caused it. Also I have a constant vibration & souund in my head. Does any of this sound familiar to you?

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Replies to "I have a chiari and I have some strange things happening to me, that I think..."

I have chairi and what you have described sounds VERY typical chairi symptoms! have you had an MRI to see how many mm the herniation is? mine is only a few mm so they treat me like I have nothing wrong w/ me..very irritating. But I would DEFINITELY push for further testing! God Bless ~Melissa

My chiari is 7mm,but the chiari org. says that the size isn't always a gage to go by. They suggest any size chiari should be evaluated by a neurosurgeon. I think you & I have already experienced being treated with disregard; I'm thankful to be connecting with other sufferers, because it reassures me that i'm not just crazy. Good luck. Judy