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Ataxia

Brain & Nervous System | Last Active: Feb 28 3:42pm | Replies (67)

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@rivermaya34

Good evening, I'm not sure if this group is where I should ask about this or what...I won't reiterate my health history (it's in my bio and posted elsewhere, FYI), but - the last several months, I've noticed worsening progression (rate or pace / intensity or nature of symptoms) in balance etc. Let me expound...I've fallen a few times, and can't seem to feel stable anymore, whether standing upright or laying down. This last month, I've experienced more frequent bouts of not-really-vertigo, but weird sensations like the floor suddenly starts moving underneath me, or I'm being tossed about by raging waves. And, I have trouble walking steadily. I always feel a bit unstable and like I need to hold onto a wall or something. Today, I lost count in how many times these sensations occurred on-and-off. I'm currently waiting on test results for PNS antibodies/cancer etc (Athena test code #3148). I have to get nerve tests redone in a few weeks, then I go back to my main neurologist at the end of June to get all these results and see where I'm at....my questions are: 1) Do I need to contact him now to let him know of recent changes? Will this affect anything? 2) Are there any practical steps I can take to reduce these awful sensations...I'm already nauseous from nerve pain and don't need the extra layer to exacerbate it all lol. I can handle a lot, but...I'd be grateful if this subsided, rather quickly. Thanks in advance, any information is welcome. 🙂

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Replies to "Good evening, I'm not sure if this group is where I should ask about this or..."

Hi @rivermaya34, I'm pretty much balance challenged myself. You mentioned the symptoms pretty much changed the past few months. I think it's a good idea to let your neurologist or doctor know sooner rather than later. I found some really good information that may shed a little light on what may be going on and help answer your questions.

Balance Disorders — Causes, Types & Treatment | NIDCD: https://www.nidcd.nih.gov/health/balance-disorders

I think the fact that you recognize you are having the symptoms gives you a heads up and may help you prevent a fall. Mayo Clinic has some simple balance exercises that may be helpful here - https://www.mayoclinic.org/healthy-lifestyle/fitness/multimedia/balance-exercises/sls-20076853

Hoping you have a much better day and find some answers.