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Hypermobile Ehlers Danlos Care Team at Mayo Clinic?
Visiting Mayo Clinic | Last Active: Jun 16, 2022 | Replies (9)Comment receiving replies
31 year old daughter diagnosed with hyper mobile Ehlers Danlos, Hypothyroid, and seizure activity.
Can she please be seen at the clinic for more specialized treatments? She is getting depressed with the progression of disease and the daily pain associated with it.
Replies to "31 year old daughter diagnosed with hyper mobile Ehlers Danlos, Hypothyroid, and seizure activity. Can she..."
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@sriddle, I can imagine you are very worried about your daughter, including her mental state as she deals with difficult diagnosis. You'll notice that I moved your question about being treated at Mayo Clinic to this existing discussion
- Hypermobile Ehlers Danlos Care Team at Mayo Clinic? https://connect.mayoclinic.org/discussion/hypermobile-ehlers-danlos-care-team-in-arizona/
@katemschultz posted this informative message when she was preparing for her first EDS visit to Mayo in Rochester
– What to expect at Mayo Clinic, Rochester https://connect.mayoclinic.org/discussion/what-to-expect-at-rochester
@jthigpen writes about their experience at the EDS Clinic at Mayo Clinic in Florida here: https://connect.mayoclinic.org/comment/320392/
The comprehensive EDS Clinic is located at Mayo Clinic in Jacksonville, FL. Might requesting an appointment at Mayo Clinic in Florida be an option for you and your daughter?