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Fibromuscular dysplasia (FMD)

Heart & Blood Health | Last Active: Sep 11, 2019 | Replies (59)

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@kariulrich

For those of you with FMD, how are you doing? Any new news?

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Replies to "For those of you with FMD, how are you doing? Any new news?"

Hi Kari,
I'm doing well, thanks for asking. I had a check up in April with Dr. Houghton and had a CTA and an MRA to check my carotids, renals and mesenteric arteries as those are the ones that are affected by my FMD. I take 5 mg Lisinopril and a baby aspirin every day so I am one of the very, very lucky ones. I received a letter about being included in the Registry from Dr. Shields, so I take that as positive. When I was there in April I did complain to Dr. Houghton that Mayo was not part of the Registry and pointed out that their competition was included in the the Registry so I thought Mayo should be more proactive there. He said he would talk to Dr. Shields, so maybe that is partly why Dr. Shields sent out these letters to the FMD patients. Who knows? Anyway, all is well and I hope it stays that way! How are you doing??