← Return to Streptomyces. Just diagnosed with this.

Discussion

Streptomyces. Just diagnosed with this.

Autoimmune Diseases | Last Active: May 14, 2022 | Replies (3)

Comment receiving replies
@meningone

I was shocked when I got this diagnosis. I do not garden or have any contact with soil in the way you would think that could cause this. I have a few little house plants like most people. I also think it's odd I developed PE without a whole lot of warning just this past July. I recovered well from it, but it was rough. I was active and working a physically active job until I contracted bacterial meningitis in 2018, then these things started happening to me afterward. Coincidence? The disease? The antibiotics? I was never considered to be immune compromised before then, although I did have the gut issues before then. I have a very stretched out long colon. My colonoscopy nor barium enema xray could be completed. Right now they have started me on 4 wks of Bactrim with weekly bloodwork to keep a check on my kidneys. Since so little is known about this, they don't know if the Bactrim will work or not. I still feel about as bad as I did when I left the hospital 6 wks ago. I'm to see a rheumatologist the end of July. I don't know if I'll get any answers or not. My ANA has always been negative but my inflammatory markers are 145 and my pulmonologist said they're suppose to be 8 or under. I'm clueless about what that means really.

Jump to this post


Replies to "I was shocked when I got this diagnosis. I do not garden or have any contact..."

@meningone this must be so difficult for you. Things happening so quickly and no answers. I’m glad that you’re going to see a rheumatologist. End of July is a long time to wait, though. Can you call the office and ask to be put on a cancellation list? If someone has to cancel, you would have a good chance of getting an earlier appointment.
In preparation for your appointment, you can do several things: 1. Start a list of questions just like you’ve done here and, 2. Continue to wear your mask whenever you’re out and about. And ask people, who come into your home, to wear a mask also. 3. Identify someone who can accompany you to appointments and take notes.
None of this is meant to scare you. I just want you to stay safe until the doctor can give you instructions on your diagnosis. I’m going into my 5th year with my autoimmune illness and wearing a mask has been such a lifesaver for me!
Remember, @loribmt and i are here for you. Stay in touch and ask questions and even rant! We’re not going anywhere. Sound good?