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Who else has Autonomic Neuropathy?

Neuropathy | Last Active: Nov 28 12:24pm | Replies (124)

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@obackus

I have been diagnosed with Small Fiber Polyneuropathy after 12 years of issues. I also have autonomic dysfunction that affects my digestive, heart and bladder. I take pregabalin and duloxitine for the neuropathy, heart and blood pressure meds for the heart issue (tachnycardia) and probiotics for my digestive issues with Reglan if needed for nausau. I have found this to be a very long road with many dead ends until I was finaly diagnosed after having autonomic testing in Boston by Dr. Peter Novak. I was told while I was there that Dr. Novak travels the world to find answers and best practices for autonomic neuropathy issues so I am one of his patients now. I have also been tested for several autoimmunes and everything under the sun with no clear answers.

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I call my SFSN and Autonomic Neuropathy, death by a million papercuts. If it’s not one thing it another. Grrrrr

Hello@ Obackus, I would like to discuss with you privately on the way forward and the treatment plan that you are undergoing to tackle the autonomic dysfunction. I am currently having that challenge now and at of work and totally depressed. It is always sucidal. I want to get back to my feet again and manage everything one thing at a time. Kindly assist here or tell me any other means that we can communicate, please.