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Ibrance and Letrozole: Newly Diagnosed Treatment
Breast Cancer | Last Active: Jan 22, 2023 | Replies (104)Comment receiving replies
I was on Ibrance/Letrozole for 7 months then the tumor markers started going back up and I’m now on Afinitor/Faslodex. My onco had guessed the Ibrance would work for 12-18 months, but it didn’t. I don’t give much weight to “survival rates” as I think every body is different. For me, fatigue was the big issue with Ibrance. Although still there it’s less with Afinitor. I was on 10mg of Afinitor, but developed mouth sores even with using a prophylactic mouth wash, so am dosing at 7.5 now and will see how that goes. FYI, there’s a mouthwash known as Magic Mouthwash to treat sores if you get them. Not available OTC, needs to be compounded and my insurance won’t cover it. You can also get the recipe online. Hope all goes well with your treatment.
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At least your oncol thought it might work 12-18 mths .The oncol I had , who placed me on the Ibrance/Faslodex regimen totally missed when her 8 1/2 mth pregnant case mgr didn't set the appts right ( patient is supposed to take shots at 2 wks , 2wks , 2wks THEN go monthly ). She also GAVE up for no reason , when the very FIRST cycle of Ibrance at the highest dose gave low blood counts ! Tried to push me onto horrible drip infusion Taxol , including tons of steroids and not even give the Ibrance/faslodex regimen a chance to succeed . My research indicated 80% of patients do better on 100 mg dose , so I pushed for that ,and she has reluctantly lowered the dose , and I'm doing much better , labs are good . Yes , fatigue is real but SO SO SO much better than drip chemo side effects !!!!!!!!!!! New oncol is up next week , hooray . "I don’t give much weight to “survival rates” as I think every body is different. " <<TRUTH
Best to everyone , PJ