I am very sorry your husband has that diagnosis, as does mine. My husband had the total gastrectomy last September. At first, he was having a lot of trouble eating right. I found it helpful to out his protein and calorie goals on a white board. A friend of mine that is a dietician even helped me make a schedule of things to eat that he was willing to eat.

After a couple of months, he could eat a wide variety of foods and was much more normal. He still had to eat often, but the quantities he could eat did gradually improve.

Right now he is having more trouble because of strictures forming at the junction between his stomach and esophagus. I am hopeful that this will eventually resolve.

He got very very skinny (he always was thin) but we found that he can put some of the weight back on when he is able to eat well.

He sleeps propped up. If your husband needs to sleep with his head elevated, I think it would be easier to prop up the head of your bed with blocks that stores sell.

If I can be of any help, feel free to write back.