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I was recently diagnosed with Bronchiectasis.

MAC & Bronchiectasis | Last Active: Nov 19 7:40pm | Replies (181)
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@sueinmn

Hi Gloria & @alecia52 - It is always helpful to hear each person's experience. Like every other disease or condition, everyone is affected differently, with different severity, underlying conditions, etc.

For example, I have managed fine with levalbuterol, 7% saline, some meds to thin mucus, and antibiotics only for a flare. But the Big-3 antibiotics, not so much! Others are not so fortunate, and the search for effective management is an ongoing process.

Alecia, do you have any more questions for us?
Sue

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Replies to "Hi Gloria & @alecia52 - It is always helpful to hear each person's experience. Like every..."
ess77 - Elizabeth | @ess77 | May 28, 2022

@sueinmn, @gbippy , @alecia52, @colleenyoung, and all...
Well, Goody. I saw my Mayo pulmonologist last week. He diagnosed brachectasis, a new one for me. I have Sarcoid that hit my lungs when I was 40 and have multiple pneumonia, chronic bronchitis, asthma, lots of shortness of breath and low o2 at times. I'm using a bi-pap for obstructive sleep apnea and other sleep disorders, slight automatic neuropathy, forget to breath during the day at times, and ????

This new diagnosis was a surprise. So, I'm researching, asking questions so I know with what I'm dealing.

Doc referred me to pulmonary rehab, wait list due to lots of covid patients. Nebulizer with albuteral. I used it first time yesterday and had med reaction for hours.. I spoke with nurse, then doc called and switched me to levelbuteral, I think. And saline. How does the saline work in nebulizer? Add to med? Does it extend the moist treatment and help loosen phlegm?

Also, added an oscillary positive expiratory device??? Said it's a bit messy getting more junk out of lungs. I coughed up brown/green stuff yesterday. Nothing now since not using nebulizer until get new med Tuesday! Yuck.

Taking 5 days 20 MG prednisone, 1x daily Breo inhaler.

Referred to immunology as I have frequent infections...sinus that required surgery last year with infection non-responsive to any antibiotic, even in nasal spray. I use xylytol nasal spray 1x daily. Allergic to all others.

Testing immunoglobulin levels and expect to begin IVIG Infusions. Had years ago for misdiagnosed MG, but helped a lot.

Shortness of breath is at times very bothersome. I love pool therapy and do that in 94 degree water 2x daily w/pt. Love it!!!!

Walk with walker when strong enough but not lately.

I'm feeling some concern and want more info. Need to understand it all. So, any help and info is appreciated.

Worn out writing this. Headed to bed soon...be well and be blessed.
Elizabeth

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