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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)
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@emma321

I was just diagnosed with PMR last week, day 6 of 15 mg of Prednisone. I could at least get out of bed and off the couch without much pain now. Can you have bursitis at the same time as PMR? I notice my shoulders still feel sore but at least I am not in a lot of pain. I do not want to go up on Prednisone, can not wait to be off this medicine all together.
I indoor cycled all during the pandemic , since I was working from home for about 2 years. Around 4 months ago I noticed my hips hurt, so I just thought I was over doing it with the biking. It slowly got worse and moved into my shoulders. My blood work came back high with SED Rate & CRP .
Thank you for this forum.

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Replies to "I was just diagnosed with PMR last week, day 6 of 15 mg of Prednisone. I..."
John, Volunteer Mentor | @johnbishop | May 12, 2022

Hello @emma321, Welcome to Connect. Sorry to hear that you have joined the PMR club. My PMR is currently in remission for the second time but I definitely remember the feeling. I think the hardest thing about tapering off of prednisone is you really have to listen to your body now matter how much you want to get off of prednisone. There are a few discussions you might find helpful:

-- PMR Dosages and Managing Symptoms: https://connect.mayoclinic.org/discussion/pmr-dosages/
-- Prednisone tapering is hard: Do complementary therapies help?: https://connect.mayoclinic.org/discussion/prednisone-tapering/
-- Prednisone tapering and remission: https://connect.mayoclinic.org/discussion/prednisone-tapering-and-remission/

Did your doctor or rheumatologist put you on a tapering schedule?

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Teri | @tsc | May 12, 2022

Hi @emma321 Ihad PMR, undiagnosed, then Giant Cell Arteritis, diagnosed by temporal artery biopsy a year after onset of PMR symptoms. My initial dosage of prednisone was 40 mg, tapered down to 3.5 mg now, about a year later. Through all this, I've had issues with my right shoulder - osteoarthritis and some rotator cuff tears. The pain is pretty constant, even with the prednisone. I use an infrared heating pad, do ultrasound, and just started using a TENS Unit - all those give symptomatic relief as well as an occaional tylenol. I've been doing Physical Therapy for a year too. All the best.

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