Connect
← Return to Newbie MAC caregiver with questions
Discussion
Newbie MAC caregiver with questions
MAC & Bronchiectasis | Last Active: Jul 23 8:34am | Replies (29)Comment receiving replies
Big suggestion - have the pulmonologist order a treadmill test for him and monitor O2 and heart rate. My friend who had COPD was able to resume walking with a small O2 concentrator that she put in a backpack. Her O2 sats dropped from 90-01 to low 80s when we tried to walk.
Also, tell him if he drinks water often, it thins the mucus and eventually reduces the coughing. REALLY! You might have mentioned Mucinex - I use 600 mg Mucinex LA (guaifenesin only formula) and N-acetyl-cysteine 600 mg twice a day to thin the mucus. Both can be pricy, but if it works, find it on line in larger quantities a lot cheaper.
You, my friend, are an awesome caregiver. If he doesn't thank you every day, I will!
Now, what have you done for yourself today? A walk in the yard, a few pages of a book? Pulled out your knitting, crochet or Sudoku for while you are waiting for the doc next week?
Sue
Replies to "Big suggestion - have the pulmonologist order a treadmill test for him and monitor O2 and..."
Dear Sue, I am ritapearls husband and caregiver.Yes we are still around and we are overwhelmed with hope from each of your advises.
Rita’s therapy for the last 7 months is Arikayce, azithromycin 500,ethanbutol1200 mg all 3 times a week,albuterol and 3% twice a day.I have come a long way meaning no pneumonia or flareups.Still mac positive.She is eating better and going to physical therapy.We are getting outside more but refrain from anything indoors due to Covid concerns.I am constantly seeking new therapies and offer them to our Bronchiectasis Team at NYU Langone Pulmonary.Sometimes I think you help as much.
I hope your health is up to par and enjoy the summer.
Richie
Connect
Bruce has done the treadmill test. He's also had several lung function tests and every time we have pulmonology appointment he has to take a 15 minute walk with the PA while monitoring his oxygen levels. It's been brutal for him. Levels fluctuate but never lower than 93 with some as high as 100.
Yes to the water. His lungs are overwhelmed. He has a cavity or hole in one which doesn't help the healing process.
As for what I do for myself? Read, walk, work in my garden, spend time chatting or visiting with my kids who live nearby with their lovely spouses. I am not quite ready for a rubber room. 😉