Connect
← Return to Who else has Autonomic Neuropathy?
Discussion
Who else has Autonomic Neuropathy?
Neuropathy | Last Active: Jan 25, 2023 | Replies (105)Comment receiving replies
I live in Europe and I'm suffering SFN with neuropathic pain in both feet and hands and some autonomic stuff as night sweating, swollen blood vessel and some digestive issues, along with dried eyes and mouth.. Etc I've seeing a lot of specialists , many of whom suspect I have SFN but I have not still a diagnosis. Today at last I'm having a corneal confocal microscopy procedure. Does anyone know if this microscophe is enough to confirm this pathology?? How can I know it has an autoimmune origin?? What else can I do??I have also other autoimmune diseases such as hipotiroidism and gastritis... But they have discarded others..Im only taking lyrica and tryptizol and a lot of vitamines, but this thing is progressing. It started in my right leg 2 years ago, are there any more things to try on?? I'm getting bored.
Replies to "I live in Europe and I'm suffering SFN with neuropathic pain in both feet and hands..."
Begin following a whole food plant based, low-fat diet. Have your vitamin B and D levels checked they’re usually low for people with autoimmune disease. B vitamins are needed to rebuild the nerve sheath. A synthetic B vitamin, NAC is scientifically proven to be better at rebuilding nerve sheath. Along with whatever type drugs the doctor gives you, try to heal your gut and microbiome by feeding it lots of green leafy vegetables.
@gregoria Hello. I was diagnosed with small fiber neuropathy by a skin punch biopsy. I’ve been tested for other autoimmune diseases as my doctor is trying to find an underlying cause to the SFN. I was just tested for Sjögren’s syndrome (pending results) as it can cause SFN. Some of the symptoms you’re experiencing (dry eyes/mouth) are classic symptoms of Sjögren’s syndrome. If they can find the underlying cause to your SFN, they can treat that, which could potentially improve your SFN symptoms. I hope you find answers. ~Robyn
My son age 38 was also diagnosed with SFN via skin punch. 3 out of 4 punches came back OK, but a 4th one did not.
He suffers from Balance issues and the wet skin feeling as well as no feeling over entire body. We believe it began with stress and anxiety. He was very physically fit and is trying to stay in shape despite this diagnosis. He is very health conscious and will NOT take anything. Very frustrated with every doctor just trying to give him benzos to relieve. I mean EVERY doctor too! He was on plant based for 2 months and seemed to help a bit, maybe in health overall. Very frustrating as we believe this was just brought on by stress.
Connect
@gregoria, It sounds like it can confirm small fiber nerve loss. Here's an article I found on the procedure.
"Corneal confocal microscopy (CCM) is a rapid non-invasive ophthalmic imaging technique that can image small nerve fibers in the cornea and has been utilized to show small nerve fiber loss in patients with diabetic and other neuropathies. Aug 19, 2021" --- Corneal Confocal Microscopy to Image Small Nerve Fiber Degeneration: Ophthalmology Meets Neurology: https://www.frontiersin.org/articles/10.3389/fpain.2021.725363/full
Can you give an update on what you find out after the procedure?