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Mesenteric Panniculitis or Sclerosing Mesenteritis
Digestive Health | Last Active: Feb 6 6:57am | Replies (1506)Comment receiving replies
The GI doctor listened and took notes. He doesn't want to say MP as the CT showed. Wants to rule out other things..so have to have colonoscopy and another test - but can't get in until June 22.
Just dealing and trying to push through. He said if the pain gets worse go to ER.. I laughed and said I am here trying to get help- what could an ER doctor do? Well if you need pain meds..I told him I wasn't seeking pain medication.. I want answers.
I know my comments are one sided -how I feel and understood the appointment.
I guess I have to deal with it and wait. The pain is now a dull ache in the side and I have been eating more.
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Just had my follow up appointment with the GI doctor. Well the CT is correct it is MP. Again- he hasn't dealt with anyone with this. He could put me on tamoxifen and prednisone- from what he's read. My choice... He said I am welcome to come back any time. I left in tears.
I don't know where to turn. I haven't found what triggers mine and don't want to be on medication.
Feeling lost in the wilderness.