Sue....Volunteer Mentor
I did the NJH battery of testing in October 2023 due to my needing more than the local pulmonologist's plan....of anti-biotics if I developed MAC. I knew of NJH since the 1990's due to my Mother's having had emphysema and my research at the time. It was too late for Mother. Yes the local pulmonologist told me to get the Acappella but no help directly, just a print out to read on how to do it. Yet all I read in other articles or the instructions that came with the device was to have your doctor set the setting etc. etc. with you. Received no help from him or his medical professionals in his office after two times of reaching out to them for help with it to be sure I understood how to do all. Nor did he teach me or tell me about Huff coughing. SAD what does not exist in the pulmonology departments of the local medical doctors office and health systems. Symptoms, looking back started several years ago and finally diagnosed in August of 2022 after all my visits that I kept arraanging with my primary doctor because I knew there was something dramatically wrong with me. Finally after seeing my continual weight loss and the amount of weight lost he did the C Scan and guess what... BE. He kindly held my hand as he told me the C Scan results. Of course I didn't fully understand all other than I had something seriously wrong. I work out in the yard, my passion. You mentioned that you do also work in the yard. What are the things you do to protect you from soil Mac...or for that matter shower/water Mac.?