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Hypermobile Ehlers Danlos Care Team at Mayo Clinic?

Visiting Mayo Clinic | Last Active: Jun 16, 2022 | Replies (9)
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@kngillespie

I have recently been seen at the Scottsdale campus and have several appointments in the coming months. The rheumatologist believes that I have hEDS so I am currently awaiting an appointment. Since the Comprehensive EDS Clinic is located in Florida would that be my best option? Scottsdale is definitely most convenient but I’m willing to travel elsewhere.

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Replies to "I have recently been seen at the Scottsdale campus and have several appointments in the coming..."
Colleen Young, Connect Director | @colleenyoung | May 14, 2022

Hi @kngillespie, that is a personal choice. I might suggest that you call Mayo to discuss your options. Since Mayo experts work together across campuses, there may be several variations for you. For example, I might ask if you could have a thorough work up or assessment at the EDS clinic in Florida (if travel isn’t a problem) and then be seen for follow-ups in Arizona.

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