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Ewing's Sarcoma: Where are you in your journey?

Sarcoma | Last Active: Mar 23 5:29pm | Replies (22)
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@edb1123

Has anyone had or known someone with Ewing Sarcoma? My niece has it and is about to start treatment. She is 27 which is older than most people who usually get this. Can anyone share their experiences and treatments they were given?

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Replies to "Has anyone had or known someone with Ewing Sarcoma? My niece has it and is about..."
Colleen Young, Connect Director | @colleenyoung | May 9, 2022

@edb1123, sorry to hear about your niece. I moved your message to this existing discussion called:
- Ewing's Sarcoma: Where are you in your journey? https://connect.mayoclinic.org/discussion/ewings-sarcoma-1/

I did this so you can connect with other members with experience with Ewing's sarcoma like @mgashaj @kristennursepatient @madstrong @suzanneb @erikahamilton and @erasahai.

If you niece is interested in connecting with other young adults with cancer, she can join the discussion forum here on Connect and also the monthly Zoom support group:
- Adolescent & Young Adult (AYA) Cancer group https://connect.mayoclinic.org/group/adolescent-young-adult-aya-cancer/
- YA, Me Too: Young Adult Cancer Support Group Meeting https://connect.mayoclinic.org/event/ya-me-too-young-adult-support-group-meeting-113/

What treatment will your niece be starting? How is she doing with all this?

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kristennursepatient | @kristennursepatient | Jun 3, 2022

Sorry to hear about your niece. I had Ewing Sarcoma soft tissue tumor. I had 14 cycles of chemo and surgery. Cycles alternated between vincristine, cyclophosphamide, doxorubicin and ifosfomide & etoposide. It took almost a year to get through and hospitalizations for the chemo and sometimes in-between for low blood counts and transfusions. I am now approaching my 5 year mark for being free of cancer!! There is hope and Mayo is excellent!! I wish your niece all the best. She is lucky to have someone who cares so much in her corner. It's going to be a long road and she will need all the support from family and friends.

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