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Newbie MAC caregiver with questions

MAC & Bronchiectasis | Last Active: Jul 23 8:34am | Replies (29)

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@sueinmn

Melissa - Thank You for providing me with an idea of what it must have been like for my husband when I was being treated for MAC. I too had coughing, profound fatigue, no appetite, weight loss, altered sense of taste...

A few of the things that helped my recovery were a water glass always at hand, no matter where I sat, tiny, nutritious snacks/meals every hour throughout the day, and protein drinks and smoothies.

Something else I learned was that before nebbing and airway clearance to walk a little - in the yard, down the block or even in the house it seemed to help move the mucus.

Another was to walk every day for a little while no matter how awful I felt - like Bruce I had always been a walker. At first it was only around the yard once, sit for a while and do it again. I gradually worked up to one mile, then two over a period of many weeks. This actually lifted my depression better than anything, even though I often needed a nap when I got home.

Caregiving is also a tough job. Have you found one small thing you can do for yourself each day to make things go more smoothly?

I wish you both an easier road as you go forward.
Sue

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Replies to "Melissa - Thank You for providing me with an idea of what it must have been..."

Thanks for your comments, Sue.
Bruce does keep water at his elbow 24/7 but doesn't drink as much as he should, mostly due to how much and how often he is coughing and bringing up sputum. It's a vicious cycle.
As I said in my initial post, he was an avid walker for years, clocking 8 miles a day until MAC laid him low. He picked it back up, walking a mile or two per day, off and on since treatment started but over the past couple of months his shortness of breath has been so crippling that he had to stop. Oxygen levels are good though so the source has us stumped.
He has an appointment with his pulmonologist next week for which we have a lengthy list of issues and questions. Keeping fingers crossed for answers and guidance.