← Return to Has anyone else been diagnosed with an endolymphatic sac tumor?

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@kfox7818

I didn’t discover mine until it was very big so that’s good news that you can wait. Also don’t be concerned with having a facial nerve removed, they had left that in with a small amount of tumor but the tumor regrew so that’s why they pulled it. My first few surgeries were fine, a few months to recover and back to your normal life. It is just scary bc there is not enough cases on this so it is hard to know how recovery is

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Replies to "I didn’t discover mine until it was very big so that’s good news that you can..."

Yeah 100% Google is horrible they told me not to pay Any attention to what's online as alot of it can be outdated information the same with cancer thanks so much for reaching out you've no idea how much better I feel about things