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Has anyone else been diagnosed with an endolymphatic sac tumor?
Brain Tumor | Last Active: Mar 16, 2023 | Replies (28)Comment receiving replies
You have no idea how much weight this has lifted off my shoulders it's been horrible and I don't know if half my symptoms are worse due to anxiety I think they said it was only 2cm by 2 cm ATM I'm okay walking and things I just feel as though I'm drunk I think they are just leaving it be for now then Will remove when it gets to too big a size .
Replies to "You have no idea how much weight this has lifted off my shoulders it's been horrible..."
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I didn’t discover mine until it was very big so that’s good news that you can wait. Also don’t be concerned with having a facial nerve removed, they had left that in with a small amount of tumor but the tumor regrew so that’s why they pulled it. My first few surgeries were fine, a few months to recover and back to your normal life. It is just scary bc there is not enough cases on this so it is hard to know how recovery is