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Anyone dealing with Atypical Ductal Hyperplasia (ADH)?

Breast Cancer | Last Active: 9 hours ago | Replies (231)

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@leesal123

Hello. I have been dealing with trying to understand ADH. Mammo in Dec showed distortion so had MRI which led to sterotactic biopsies on 2 areas of right breast. 1 biopsy came back with a radial scar. They performed a lumpectomy to remove and found 1 foci of ADH. Surgeon assured me it was benign yet sent me to an oncologist to learn about cancer prevention. Oncologist while very nice seems a bit socially awkward and said we needed to do bloodwork to see if I had been through menopause to determine med path...I had a partial hysterectomy 12 yrs ago. Still have pain in breast where biopsies were performed, I am told it's normal. Ended up at 2nd surgical opinion because I was not understanding why not just have a masectomy instead of taking meds that seem to cause extreme side effects and surgery may reduce the risk more. 2nd surgeon backed up 1st and said to get info from oncologist. Went back to oncologist last week and she suggested trying aromatase inhibitors for 30 days and basically walked me out of room after sending in rx. Shouldn't they monitor or get base line of bone density, vitamin d, calcium,cholesterol levels? I have no breast cancer in family, have gone to a plant based diet( already dropped 14 lbs),exercise 6-7 days a week-aerobic with alternating weight training. I feel lost, confused, guilty for feeling this way. I am terrified of starting these meds and scared I will get cancer if I don't. Sorry this is so long.

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Replies to "Hello. I have been dealing with trying to understand ADH. Mammo in Dec showed distortion so..."

Hi @leesal123, I can imagine you're nervous about starting aromatase inhibitors especially since you haven't had a chance to discuss them thoroughly with your oncologist. You are asking all the right questions and deserve to get answers or at least to have a discussion.

I'm bringing @char820 @khauff @monical into the discussion to share their experiences.

Lee, are you able to schedule a new appointment with your oncologist to discuss your concerns and get answers to your questions about the pros and cons of taking aromatase inhibitors preventatively?

@leesal123 I am right there with you. I had BIL arak lumpectomies last week and ADH in one area only. The recommendation is for tamoxifen since I’m
Not yet in menopause. I am very skeptical about taking this, and I best myself up everyday as a result.

It’s interesting that our “treatment” is preventative with big gun medications or mastectomies, but at the same time being dismissed as you mentioned about the oncologist. It’s definitely a mixed message.
In addition to this group I have hounded an ADH FB group and it’s a nice group of people who have having same struggles, but can also share their decisions one way or the other.

I hope you can find some peace and comfort with this what if breast disease, but know you are not alone. (((Hugs)))

Char