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Starting MAC treatment with "big three" drugs: What to expect?
MAC & Bronchiectasis | Last Active: May 8 5:56pm | Replies (192)Comment receiving replies
After living with this crazy stuff for years, and a few other medical issues, I have decided to take the advice of the ID doc and pulmonologist I have seen for almost 3 years.
"Take reasonable precautions, and then go live your life. If you stay as healthy as you can with exercise, airway clearance, asthma and mucus management, healthy diet, and avoiding sick people, you will be fine. Bronchiectasis is something you can live with."
I believe that - my Mom had it for many years, and died in her mid-80's from a completely different disease. So at 70, that is the advice I follow.
So, the same as I don't play basketball & volleyball that will wear out my 11 year old hips, I don't sit in hot tubs where there is probably a lot of NTM, or dump dirt and mulch where I can raise a cloud of dust. So far, this has worked for 2 1/2 years with only one exacerbation. Refusing to be afraid of anything & everything has lowered my stress level immensely so I can enjoy my life.
Sue
Replies to "After living with this crazy stuff for years, and a few other medical issues, I have..."
Sue, you have made my day! I like your attitude. I’m trying to live one day at a time and do the best I can to cope with MAC. My greatest fear, however, is that I will start coughing up blood
again—a lot of blood !
I hope you continue to do well❣️
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Thank you Sue. You are always a calm voice of reason. Just started treatment for pseudomas with Levaquin for 14 days and nebulizing Tobi 2x day for 60 days. Had tenanitis before starting so watching for any changes. By end of this treatment, MAC test should be back. Anxious about treatment to come and decisions to be made. But, one day at a time. You are reassuring that life can be lived with treatment.