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Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments

Just Want to Talk | Last Active: Jun 16 6:39pm | Replies (96)
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@louisequale

well, what is REALLY going on with Mayo? They will NOT acknowledge that ME is a real disabling condition for millions of people, mostly women!!

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Replies to "well, what is REALLY going on with Mayo? They will NOT acknowledge that ME is a..."
Becky, Volunteer Mentor | @becsbuddy | May 5, 2022

@louisequale You sound angry and I don’t blame you. So many conditions are just not recognized for their serious effect on persons and need for help. You’ve certainly come to the right place to have a rant! I wish i had an answer for you, but i don’t. I have asked one of the moderators to help, if they can. In the meantime did you know that Stanford University hospital system has a ME/CFS clinic? Ill see if i can find the link.
Where are you currently receiving treatment?

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Sue, Volunteer Mentor | @sueinmn | May 5, 2022

@louisequale - I am unsure what you mean - the link you included in your post does not work. Can you explain whether you were trying to request an appointment on line and had a problem?

Here is a recent Mayo article about the diagnosis and treatment of ME/CFS: https://www.mayoclinicproceedings.org/article/S0025-6196(21)00513-9/fulltext
Have you seen it before?
Sue

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