← Return to Anyone with PMR have experience with 4th COVID vax jab?

Discussion
Comment receiving replies
@johannab

I’ve been searching for authoritative data on what the range is for upper level of Prednisone Dose to cut off a flare of PMR. There is not any data. I wonder if we here at Connect can do some “citizen science” data collection. Just reply with the highest dose you have ever been given to cut off a flare of PMR.
Highest dose=
Time to taper=

Jump to this post


Replies to "I’ve been searching for authoritative data on what the range is for upper level of Prednisone..."

I think each person has to figure out how to taper. After a lot of trial runs here’s what is working for me. It takes me about 3 weeks to ramp down 1 mg. Alternate new lower dose (eg 16mg) with old dose (17mg) for a week. Then 2 days new dose and 1 day old dose (just one time). The 2 weeks on new dose 16mg).

Then start the cycle with 1mg lower. I’m going to 14mg this weekend, which is the fir time in 5 months I’ll be below 15mg!!!

Highest is 5. Still there

This is from Dorset Lady (PMRGCAuk group at HealthUnlocked)...the best resource I've found:

"Sometimes a return to previous dose is enough, but if it’s got too bad then it’s recommended to add 5mg to the dose you last felt alright - stay there for 5-10 days and then drop back down to just above the dose you flared. Stay there for 2-4 weeks to make sure all okay before you try and taper again.

If inflammation has been allowed to build up significantly a staged reduction may be required.

Example - if you flare after dropping from 9-8 mg, but were okay at 9mg -

Go to 14mg .......get symptoms under control - then drop back to 10mg .....and continue tapering schedule.

If you’re unsure, then drop to 12mg, stay a week then drop to 10mg......

Note that if you regularly flare, it does seem to get progressively more difficult to get subsequent flares under control. So , ideally, try not to get in that situation if possible.

If that’s happening to you, you need to reconsider your tapering regime.....not always easy if set by your doctor. But remember, you are not reducing relentlessly to zero, you are trying to find the LOWEST dose that controls your symptoms."