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Neuropathy: Anyone have any experience with gabapentin?

Neuropathy | Last Active: Mar 28 4:36pm | Replies (478)

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@rebsue

I started gabapentin about nine months ago and have titrated up to the dosage of 1800 mg for about three months now. I still have the burning post-stroke pain they are treating me for--I understand this is a common "off label" treatment for my condition. I still seem to have the same burning pain and intend to tell my doctor I want to go off of it and see how I feel--I do hate the drowsy feeling it seems to give me. And, there was an article not long ago in the NYTimes about how little evidence there is for the off label treatment's success. Can anyone share an experience of going off of gabapentin? Thanks.

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Replies to "I started gabapentin about nine months ago and have titrated up to the dosage of 1800..."

Day 1 off my 2700mg daily routine and to date, no significant difference in pain, tingling etc..

I have peripheral neuropathy for 12 years now. I had been prescribed Gabapentin then and it was a terrific sleeping pill. Every time that I sat down to watch TV or use my computer, I would fall asleep for about 4 hours.

I only used it briefly and have never used it since. Now the burn pain is intense as is the stiffness.

Has anyone tried stem cell regenerative therapy and/or 'electrical' stimulation as I am seriously considering either option.

My equilibrium has become affected as I have fallen backwards 5 times with one time I cracked my head open on a table. When I walk, I usually take 'baby' steps.

Thanks for listening.

I was started on 100mg Gabapentin for ferocious pain waking me up at night. My adult kids first noticed and brought to my attention that my breathing had become very “heavy”. I started paying attention and they were right. I’ve never had any lung issues, never a smoker, no second-hand smoke, etc. I dug out the pharmacy brochure and breathing issues are right there in the potential side effects. I went to the Mayo Clinic website and the PN Foundation website and began to follow their recommendations for using your brain to beat back the pain. It took constant attention and determination to make it succeed, but it has. Something that really helped was to remind myself often that I had my two children during the 70’s fad of “natural childbirth”, using the Lamaze breathing and mindfulness techniques successfully during long labor. A doctor told me the techniques were essentially self-hypnosis to divert your brain from the explosion of pain signals traveling up. If you research the current Pain Management Clinics, a big part of their programs is this brain “technique training”.