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ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome

Chronic Pain | Last Active: Aug 16 2:32pm | Replies (305)

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@benacnes

Hello all! I suffered from ACNES for over 3 years. It is the worst pain I have ever had and I cannot describe it accurately. I farm and ranch and have had my share of broken bones, pulled muscle, cuts, falls and even a hyperextended elbow. I understand what pain is and have worked through it. ACNES is relentless and around the clock and, in my case, took 3 years to correct.

I was told by 80% of medical professionals that it was a psychological condition. In other words, it's all in my head. I feel quite strongly that this is a phrase that should not be spoken to anyone in extreme pain!! It was a demoralizing and dehumanizing experience. Cruel and inhumane, in my opinion.

One week ago tomorrow I underwent a laparoscopic procedure that involved cutting nerves responsible for my pain. In my case it was T9, T10 and T11. The Doctor was originally going to take T10 but saw that 9 and 11 where damaged or atypical.

Bottom line is that I awake thismorning without pain. I have had zero nerve pain since the procedure, period. The pain I'm experiencing now is from the surgery.

I have my life back. I am grateful.

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Replies to "Hello all! I suffered from ACNES for over 3 years. It is the worst pain I..."

Who was your doctor - was it Dr Gillespie in Phoenix?