Well it has been an interesting year. He saw a POTS cardiologist, but hated the way the heart meds made him feel. We started him in biofeedback with a functional neurologist 3 times a week for 3 months. He did that during the spring of last year while focusing on exercising and losing weight. He passed his heart stress test and was allowed to leave for the summer to attend Drum Corp which is a very physically intense activity. He almost ended up in the hospital from cramps and dehydration the first week, but once he got his electrolyte intake up and stable he was able to continue with the activity. He made it the whole summer. I think the intense activity along with the biofeedback and functional neurologist helped reset his neuro pathways! he is almost "normal" now. He works out daily and has no leg issues anymore. His heart rate still jumps up, but he has never passed out. He will be doing Drum Corp again this summer. I think the combo of the 3 things really helped him bc he refused to take the medicine and he has no major issues anymore 🙂
Thanks for checking in!
Julene