← Return to Ibrance and Letrozole: Newly Diagnosed Treatment

Discussion

Ibrance and Letrozole: Newly Diagnosed Treatment

Breast Cancer | Last Active: Jan 22, 2023 | Replies (104)
Comment receiving replies
@pjsfla

This is odd . At Kaiser Perm , they have me on 21 days of Ibrance then 7 days off . I have been held up 3 WEEKS for low blood count the 1st cycle . Now, just past 2nd cycle, I am again prevented from continuing the Ibrance , Neutropenia again . Even on a lower dose (100) which I pushed for . So my R lung keeps filling up w liquid and I have to ck into the hopital and have it drained by Thoracentesis , so I think that sucks . I want a continuous treatment not this off and on crap , very frustrating . I would race to a different cancer dr , but stuck w Medicare assigned to Kaiser until OCT , when the whole freakin United States can do open enrollment, GRRR . I feel discouraged and trapped , and have no idea if this Ibrance/falsodex shots regimen is even worth continuing to try . It would be fine , not getting horrible side effects , considering my oncologist tried to shove me into Taxol drip chemo FOR THE REST OF MY LIFE . OH HELL NO . That would def be NO quality of Life and HUGE INTENSE side effects , vs the Ibrance pills and the monthly shots . Any guidance or ideas ?

Jump to this post

Replies to "This is odd . At Kaiser Perm , they have me on 21 days of Ibrance..."
pbnew | @pbnew | May 7, 2022

I had neutropenia and liver issues with Ribociclib. What causes your lung to fill with fluid?

VIEW AND REPLY
Chris, Volunteer Mentor | @auntieoakley | May 7, 2022

First off if you just don’t like the doctor then I would look on the website for your insurance and see if there is another provider in your area.
Failing that, I would check and see if there is a nurse coordinator/patient advocate you can talk to. I would also, have someone with me at my next appointment. Another person listening can be a big help, also some doctors will be more open to questions if you write them down and have someone with you.
I really hope you can talk about your treatment plan and what YOU would like out of that plan.
Do you have someone who can join you, and listen in, help ask questions?

VIEW AND REPLY