Anyone else have a Redundant / Tortuous Colon?

I posted this as a reply to a comment below — may be best situated here.
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I, too, am learning to live with a tortuous colon, diagnosed in my last colonoscopy several months ago. I think I can feel where it is bent in a tight switchback because there is one spot in my gut where I feel discomfort and sometimes pain. Sometimes massaging that area seems to relieve the pain/discomfort. I, like many say, am bloated all the time, have tried the low FODMAP diet to little avail, avoid gluten and a lot of dairy because they both seem to bring on severe diarrhea, bloating and pain. I can’t leave the house until after 10AM because I make 3+ trips to the bathroom every morning, usually feeling like less than complete evacuations. I was told that there can be both constipation and diarrhea going on at the same time, some stool gets through but other is hard or impacted. I have tried Miralax and need to go back to it. I had cut the dose to 1/2 capful every few days. It didn’t have a lot of effect but maybe I didn’t use it long enough in that way. The recommended dose was too much. The only thing that gave relief was a RX for a special gut-related anti-biotic after testing positive for an overgrowth in the colon. For about 2 weeks my gut felt normal but the NP would not refill the RX again.

I posted this as a reply to a comment below — may be best situated here.
——————————-
I, too, am learning to live with a tortuous colon, diagnosed in my last colonoscopy several months ago. I think I can feel where it is bent in a tight switchback because there is one spot in my gut where I feel discomfort and sometimes pain. Sometimes massaging that area seems to relieve the pain/discomfort. I, like many say, am bloated all the time, have tried the low FODMAP diet to little avail, avoid gluten and a lot of dairy because they both seem to bring on severe diarrhea, bloating and pain. I can’t leave the house until after 10AM because I make 3+ trips to the bathroom every morning, usually feeling like less than complete evacuations. I was told that there can be both constipation and diarrhea going on at the same time, some stool gets through but other is hard or impacted. I have tried Miralax and need to go back to it. I had cut the dose to 1/2 capful every few days. It didn’t have a lot of effect but maybe I didn’t use it long enough in that way. The recommended dose was too much. The only thing that gave relief was a RX for a special gut-related anti-biotic after testing positive for an overgrowth in the colon. For about 2 weeks my gut felt normal but the NP would not refill the RX again.

I am on Motegrity that helps move stool through colon. Not really a laxative. Doc also suggested tbsp olive oil at night and lots of water. I also see a pelvic floor therapist that showed me a different massage technique that involves more “pulling” than just masssging. I’ll see if there is a name for it. Maybe on utube?

I’d like to know the technique if it has a name. I do a colon massage, right to left and down, and that seems to help settle things down when there is bloating and colon activity. I’ve gotten exercises from a pelvic floor therapist. I like the olive oil & water idea too. Thanks!

Thanks for your comments, I thought I was the only one who had to wait to go out in the mornings to be sure my bathroom visits were over for the day

I know I'm late to the game here, I just found this site. As I'm reading through these posts I'm lying flat on my back in bed, dying, my pain is so horrendous. This is a three-day stint which is not unusual. Sitting is always uncomfortable for me . When I drive my seat is leaned way back. Wearing jeans or, anything around my waist will eventually lead to Pain by the end of the day. Bending over forwards, nope! I am otherwise a healthy, very active , mother of five , ages 40 to 22 years old, grandmother of five! 59 years old and for my whole life of emergency room visits for abdominal pain, I was never diagnosed until last year with a redundant intestine. This, was after I went to the emergency room and was hospitalized immediately. Nothing they gave me for pain helped. They say, narcotics do not e a s e the pain for this condition. Of course, the doctor recommended a colonoscopy but, he said, you just had one last year and it was inconclusive because they said that you were not cleaned out enough. I promised him that I did everything exactly how I was supposed to do on my last colonoscopy. He suggested, that I did two cleanings right in a row! I had to agree with him, I needed to find out what was going on with my stomach! I will say this without sounding disgusting, I could not believe how much waste was in my stomach!! Two nights in a row! Psychologically, if you suffer this pain and discomfort, and bloating, it can wear on you. Really, wear on you. I have found that being grateful for the littlest of things in my life, the beauty of nature, trying to stay in touch with my grandchildren via FaceTime , it's hard to put on a happy face with them when I'm having an episode. Currently, I have no insurance. I live in Florida. The doctor in the hospital recommended I follow up with the doctor who did they colonoscopy so I called the office to set up an appointment, I knew I would be paying cash I figured probably in the hundred dollar area. The woman was very Curt when she let me know that the initial visit fee was $275 no it's ands or buts about it, no payment plan no nothing. So, my life continues with my general practitioner trying to figure things out. My general practitioner, I might add, is a different doctor every time I go there so, there is no relationship building, no ongoing, effective, communication. I have to tell my story over, and over, and over again. One of the doctors who, I happened to see many times, and once after I was hospitalized with a severe attack, said the first colonoscopy was inconclusive. He was thoroughly convinced that my whole problem was constipation nothing more. I stood my ground, I know my body, I told him there is something in there that is not right. Wow, I know I've rambled, nobody understands what I'm going through or the severity of the pain and how it just overwhelms your whole mind and being. This too shall pass. I am, on my good days, a very upbeat, happy, funny, loving human being. I feel very alone in this struggle... I just want this never-ending pain to leave me. Well, if you took the time to read this far, thank you!

Just went through this and you would think my dr who is a motility specialist would have known better. Had me do a 3-day low residue diet which is basically high-carb no-fiber prior. What it did was totally constipate me so I was behind going into the prep. Did the jug of Golytely. Thought I was good. Nope. Couldn’t get all the way in. Told me my colon was like a roller coaster. Next time, no low-residue, two-day prep. More Golytely. So talk to your doc about this Before!