← Return to Non-Length Dependent Small Fiber Neuropathy

Discussion

Non-Length Dependent Small Fiber Neuropathy

Neuropathy | Last Active: Nov 27 9:39am | Replies (135)
Comment receiving replies
@jaijai

My first symptom was a tingly tongue. My PCP told me I was hypersensitive. Three years later, I finally received a diagnosis of idiopathic NLD-SFN. It’s an adventure! It does scramble across my face and scalp at times.

Jump to this post

Replies to "My first symptom was a tingly tongue. My PCP told me I was hypersensitive. Three years..."
John, Volunteer Mentor | @johnbishop | May 4, 2022

Hello @jaijai, I would like to add my welcome to Connect along with @gator66, @quentin123, @sf2021, @kathleen123 and others. There seems to be a lot that is not known about this condition and it's good to learn what has helped others. Here are a couple of articles on NLD-SFN that may shed some light on the difficulty of this condition.

-- 2021 - Non-length-dependent small fiber neuropathy: Not a matter of stockings and gloves: https://onlinelibrary.wiley.com/doi/abs/10.1002/mus.27379
-- 2010 - Non-length dependent small fiber neuropathy. A prospective case series: https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1529-8027.2010.00252.x

Did your doctor or neurologist suggest a treatment that helps?

VIEW AND REPLY