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Starting MAC treatment with "big three" drugs: What to expect?
MAC & Bronchiectasis | Last Active: May 8 5:56pm | Replies (192)Comment receiving replies
I am a 76 year old female with alpha-1 anti-trypsin deficiency, COPD, bronchiectasis and now MAC. I did Azithromycin, ethambutol and rifampin three days per week. ( Previously- decades ago- I was allergic to erythromycin.) After 2 weeks i had a rash on my face. Then I developed an arrythmia and now tinnitis. ( Plus nausea, dizziness, poor appetite and fatigue.) Stopped the antibiotics so as to get cardiology consult and then try other antibiotics. Has anyone had to take the other drug that requires FDA approval? What other antibiotics could substitute for azithromycin? Help.
Replies to "I am a 76 year old female with alpha-1 anti-trypsin deficiency, COPD, bronchiectasis and now MAC...."
Given the complications and drug sensitivity, I would think you should be seen by an Infectious Disease specialist - they have access to the largest arsenal of antibiotics, and can try different combinations for you.
Have you been seeing an ID doc or a pulmonologist?
Sue
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Hello, Dear, I took the same 3, after a sensitive test, 3 times a weak, for almost 3 years, then I changed to Claritomicine and maintained the other 2, daily. But I really got better after 46 infusions of Amikacine, which I quit because of hearing losses. I am still in treatment. If you need further informations about my protocole, please let me know. Wish you sucess in your treatment.