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Pituitary adenoma rediagnosed: They're not sure now
Brain Tumor | Last Active: May 31, 2022 | Replies (9)Comment receiving replies
@reilly3, I'm so glad that your daughter's treatment is shrinking the tumor and that you took the time to offer reassurances to @hmcmillian. It helps to hear from others.
@hmcmillian, you can read more about Reilly's daugther's situation in this discussion:
- Teen daughter 2cm x 1.1 pituitary tumor: Any advice? https://connect.mayoclinic.org/discussion/teen-daughter-2cm-x-1-1-pituitary-tumor/
They also got a second opinion from Mayo Clinic and can share their experiences.
@hmcmillian, may I ask what they thought you had and why the hysterectomy was hoped to be the solution? It must be confusing to get a diagnosis of a pituitary tumor and then for it to be retracted. The symptoms you shared here could be related to an endocrine-active pituitary tumor. It will be good to get a second opinion as you are doing.
How are you managing your headaches and staying comfortable until your appointment?
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My gynecologist never did any lab work to confirm my prolactin levels. This was done by a new pcp I got after my total hysterectomy. The gynecologist thought my breast pain and drainage was all hormonal related. Clearly it wasn't. Nothing seems to help with my headaches. I've tried many things. My joints now are so painful.