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Pituitary adenoma rediagnosed: They're not sure now
Brain Tumor | Last Active: Oct 31 3:32pm | Replies (12)Comment receiving replies
My daughter diagnosed January with pituitary adenoma (macroprolactinoma) prolactin level at 500. Cabergaline (sp?) dopamine agonist meds reduced levels from 500 to 21 in 3 months and tumor has begun shrinking from 19 x 11 mm it was in January.
Replies to "My daughter diagnosed January with pituitary adenoma (macroprolactinoma) prolactin level at 500. Cabergaline (sp?) dopamine agonist..."
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@reilly3, I'm so glad that your daughter's treatment is shrinking the tumor and that you took the time to offer reassurances to @hmcmillian. It helps to hear from others.
@hmcmillian, you can read more about Reilly's daugther's situation in this discussion:
- Teen daughter 2cm x 1.1 pituitary tumor: Any advice? https://connect.mayoclinic.org/discussion/teen-daughter-2cm-x-1-1-pituitary-tumor/
They also got a second opinion from Mayo Clinic and can share their experiences.
@hmcmillian, may I ask what they thought you had and why the hysterectomy was hoped to be the solution? It must be confusing to get a diagnosis of a pituitary tumor and then for it to be retracted. The symptoms you shared here could be related to an endocrine-active pituitary tumor. It will be good to get a second opinion as you are doing.
How are you managing your headaches and staying comfortable until your appointment?