Hello @hmcmillian and welcome to Mayo Connect. As I read your post, I certainly felt the frustration you must feel at getting so many contradictory messages from your doctors and having continuing painful symptoms.

I'm really glad to know that you have an appointment at Mayo Clinic to get to the bottom of this problem. Mayo specializes in hard-to-diagnose problems and they have research that allows them great treatment modalities.

If you are comfortable sharing more, what type of specialist will you be seeing at Mayo?