what are your symproms and how do they affect you if you don't mind me asking. I am like the lady that posted the problem.I have constant stiff muscles and now Osteoarthritis everywhere with Erosive type in my hands. Tendonitis in feet/ankles,neck and shoulders. If one pain calms for a while lets say in my right shoulder then my left picks up the pain to keep me on my toes. I started with pain in my right shoulder girdle/neck when I was 29yrs old within hrs of giving birth to my 4th/final child I am now nearing 69yrs old with not one day of being anything but riddled in pain from these stiff muscles,they feel like they made of thick old rope and are being twisted. I demanded being referred to a rheumatologist but although a lovely man they don't deal with Osteo so sent me on my way with a plan of meds which didn't work. How is it there isn't a specialist for this. I go to the pain clinic for nerve ablation but any other shots in my spine don't work and they don't really deal with anything beloew the neck and above the lumbar area.

I've seen Pain specialist, Orthopedic specialist, Internal specialist, Rheumatology specialist, Gynecologist, Infectious Diseases specialist, Psychology specialist. I have had MRSA for over a year, Shingles around my eye and been dismissed that it was something else, UTI's, BV(Gardnerella -which during my yearly I had to beg, plead and argue with gynecologist to test for something cuz things were not right, after she kept giving reasons and excuses to explain my reasons away to test me ...hmmm... I was right...GRRR), Polymorphic Light
Eruption, Carpal Tunnel, Plantar Fasciitis, Thrombocytosis, Fibromyalgia, Psoriasis(on and off since I was 2), Multiple fatty deposits on my head, High Cholesterol/Hyperlipidemia Mixed, Mono, Strep throat(even had Mono and Strep at the same time), Hernia at age 7, Heart Murmur when I was 6 months old and it went away, celulitis, Gastrointestinal infection, IBS, Hyperthyroidism, Hypothyroidism, Vitamin D Deficiency, Adjustment Disorder Mixed Reaction, Depression/Anxiety, Depression Major Recurrent Moderate, Koilonychia Acquired, Migraines, Neuropathy Peripheral, Numbness Hand, Raynaud's in hands and feet, Scoliosis, Pain in Lumbar and Thoracic, Pain in both shoulders, Sacroiliac joint dysfunction, narrowing of C5-C6, minimal straightening of Lordosis, degeneration of my facet joints, sclerosis of the greater tuberosity, lazy eye, Thrombocytosis Unspecified, kidney stone, ringworm etc. etc. etc.....lol...I have done a immune system genetics test which came back not finding any pathogenic variants but found 4 variants of uncertain Significance (Variants they don't know enough about to determine any pathogenic relation to disease). I have all these issues and symptoms but tests always seem to show negative or I am missing the 1 or 2 significant criteria in order to be diagnosed for any diseases that are so close to anything! I don't have Lupus, Hashimotos, Psoriatic arthritis,
etc...etc...etc... They have never scraped my skin to test for a negative or positive identification for psoriasis so then when I go to Rheumatology specialist and he sees no evidence of psoriasis( because it is in dormant state) and nothing in records except me saying I have had it I am made out to be crazy or untruthful or making up stuff! Also after 3 separate
radiologists with 3 different xrays in a span of 4 years that state there is small erosion of my bone on finger the Rheumatologist states in my record that he looked over one said xray and saw no evidence of small erosion!! WTH. Patients should not be expected or have to doctor sit and battle over things that we do or don't know to try and fix ourselves or get them to step up to our plate! Sorry this is just a cycle of the lifelong continuation of frustration, disappointment, dashed high hopes of getting answers or getting better but I know I am not the only one . It feels good to vent a little and be emotionally validated.