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Nebulizer and saline treatment with daily exercise

MAC & Bronchiectasis | Last Active: Jan 8 9:46pm | Replies (52)
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@laurademaine

Hi Kate. Thanks so much for all the information. I am very happy that you did not take the antibiotics. I really think that overall they do more harm than good. I really like my pulmonologist but he referred me to a Infectious Disease Dr that I am not comfortable with. That’s why I decided to just do whatever I can do on my own until I move to Phoenix and get set up with new doctors. I would love to go to Mayo but not sure if they will take my insurance. I’ve also heard great things about The Jewish hospital in Colorado. They specialize in NTM. Taking NAC sounds like the way to go. Happy to hear that you can buy it over the counter! I know I can get a nebulizer from Amazon. Can I also get saline without a RX? I will see my pulmonologist soon and want to know what to ask him for.
I really appreciate your response. Thanks so much.

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Replies to "Hi Kate. Thanks so much for all the information. I am very happy that you did..."
alleycatkate | @alleycatkate | May 2, 2022

@laurademaine Ooops... I meant nodules, not nodes. I also meant 7% saline, not 6%. (need to be less hasty in my reply) Yes, you can find the saline on amazon and the internet but it is very expensive that way without an RX. National Jewish Health is the leading lung hospital so if you can go, that would be great. They also have good video presentations on NTM to help get a better understanding of the disease.
https://www.nationaljewish.org/education/pro-ed/live-events/ntm-patient-videos
Best,
Kate

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lorifilipek | @lorifilipek | May 2, 2022

@laurademaine Hi Laura, my history is very similar to that of @alleycatkate. What eventually led to the diagnosis of bronchiectasis and MAC (after about a year) was that I coughed up about 2-3 TBS blood while lap swimming in 2017. The blood scared me, so I went to the ER, and they did a CT scan. My only other symptom is that I cough up minor mucus/sputum in the mornings. I walk 2-2.5 miles/day, do other daily exercises, and have never taken the Big 3. I do nebulize 7% saline once daily and take one 600-mg capsule of NAC each day.

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