← Return to Nebulizer and saline treatment with daily exercise

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@karissy

Hi I was diagnosed with MAI and bronchietasis last August. I really have no symptoms like coughing or feeling tired. My pulmonologist said she would want to start treatment but she wanted me to see an ID doctor and have him decide. When I saw him he said he would not put me on the meds because I had no symptoms. He said exercise and airway clearance is the most important thing I could do. Then he would do. CT scan every six months. Sometimes you can clear this by doing these things. Right away I started walking 5 miles every morning 7 days a week and clearing my airways with my vest . I do that twice a day each time 20 minutes. So far I feel great with no effects at all. I feel so good that I have to remind myself that I have it. I even had another CT in February where everything remained stable.This has so far worked for me. I do not want to take the antibiotic treatment if I don’t have too. I will push myself to continue what I am doing. I strongly believe this has made all the difference in how I feel.

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Replies to "Hi I was diagnosed with MAI and bronchietasis last August. I really have no symptoms like..."

So happy for you. Sounds like the current treatment is working for you!! Hope it continues. Yes a Dr that is knowledgeable in MAC is so important. Seems like most Drs put you on the big 3 as that is the standard protocol and they don’t give you alternatives. They have no idea how terrible the patients feel. Keep up the good work.