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Have you tried the new Protocol 525 product for neuropathy relief?

Posted by John, Volunteer Mentor @johnbishop, Apr 21, 2020

I have used the original version of the Protocol 525 product (https://theprotocolworks.com/) since 2016. I have idiopathic small fiber peripheral neuropathy with the only symptom being numbness in both legs. When I started taking the protocol, the numbness was just below my knees. After 2 months, the numbness seems to be just above the ankles which is subjective on my part with no additional testing. I do feel it is a win-win for me as my neuropathy has not progressed like I was told it would by the neurologist. I have continued taking the protocol in hopes that it may continue to roll back the numbness symptoms. I have noticed some new feeling in my feet in the last 2 months. Some feeling has returned to me feet and they seem to feel better lately although I still have the numbness – hard to describe the difference.

The Protocol 525 is not a cure for neuropathy. It treats the pain and discomfort symptoms of neuropathy without the drugs which have their own side effects. Have you tried the Protocol 525 or the original protocol? Did it help? If yes, how? If no, please share.

Note: I have no commercial investment in the protocol and I am sharing this information as someone who has found some degree of relief using this combination of supplements. I also discussed these supplements with my Mayo primary care team before I started taking them. The care team sent them to the pharmacist for review who did not have any major concerns for me taking them.

*** Edited Oct 3, 2023 ***
For more information and a list of the ingredients, please see the frequently asked questions on the Protocol's website here - https://theprotocolworks.com/faq/.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Mentor
John, Volunteer Mentor | @johnbishop | Apr 29, 2022
In reply to @kmst1994 "I have read through this entire thread with great interest. In my reading I have come..." + (show)
@kmst1994

I have read through this entire thread with great interest. In my reading I have come across two stories of success @johnbishop and @aemedic. I am so glad to hear this 525 protocol has provided improvements for you both. I would be interested to hear if others have also experienced improvements while taking this protocol. Thanks!

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@evansjohn007 shared his story in another discussion here - https://connect.mayoclinic.org/comment/611196/

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gbny1224 | @gbny1224 | Apr 30, 2022

Look into rosemary it's cheap I started taking that is a proven neuro protector.

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retired123 | @retired123 | May 1, 2022
In reply to @kmst1994 "I have read through this entire thread with great interest. In my reading I have come..." + (show)
@kmst1994

I have read through this entire thread with great interest. In my reading I have come across two stories of success @johnbishop and @aemedic. I am so glad to hear this 525 protocol has provided improvements for you both. I would be interested to hear if others have also experienced improvements while taking this protocol. Thanks!

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I have not tried 525 Protocol due to the complexity and expense but I am taking EB-N6. I am impressed with my improvement. It has been 7 weeks now. I have SFN with no pain. More feeling is returning to my feet and I now am taking only 50mg of Pregabalin daily. In another few weeks I will try sopping the Pregabalin completely.

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2 replies
Mentor
John, Volunteer Mentor | @johnbishop | May 1, 2022
In reply to @retired123 "I have not tried 525 Protocol due to the complexity and expense but I am taking..." + (show)
@retired123

I have not tried 525 Protocol due to the complexity and expense but I am taking EB-N6. I am impressed with my improvement. It has been 7 weeks now. I have SFN with no pain. More feeling is returning to my feet and I now am taking only 50mg of Pregabalin daily. In another few weeks I will try sopping the Pregabalin completely.

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@retired123, You mentioned you have SFN with no pain. I'm curious why a doctor/neurologist would even prescribe pregabalin if you have no pain. My neurologist and my PCP tried giving me gabapentin and when I told them it's not helping the numbness they both told me there are no drugs that will help numbness, it's only used to treat pain symptoms by blocking the pain signals in the brain (my interpretation of what they told me).

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1 reply
ubelinda | @ubelinda | May 1, 2022
In reply to @retired123 "I have not tried 525 Protocol due to the complexity and expense but I am taking..." + (show)
@retired123

I have not tried 525 Protocol due to the complexity and expense but I am taking EB-N6. I am impressed with my improvement. It has been 7 weeks now. I have SFN with no pain. More feeling is returning to my feet and I now am taking only 50mg of Pregabalin daily. In another few weeks I will try sopping the Pregabalin completely.

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What is NB-E6? Where can I get it? Thanks
Ubelinda

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1 reply
retired123 | @retired123 | May 1, 2022
In reply to @johnbishop "@retired123, You mentioned you have SFN with no pain. I'm curious why a doctor/neurologist would even..." + (show)
@johnbishop

@retired123, You mentioned you have SFN with no pain. I'm curious why a doctor/neurologist would even prescribe pregabalin if you have no pain. My neurologist and my PCP tried giving me gabapentin and when I told them it's not helping the numbness they both told me there are no drugs that will help numbness, it's only used to treat pain symptoms by blocking the pain signals in the brain (my interpretation of what they told me).

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That is exactly what I asked THEM. Each doctor told me it was the "treatment" for neuropathy symptoms with or w/o pain. It did help a bit with the tingling but I wasn't satisfied with their answer so I kept looking. I found a doctor that told me the med tricks your brain into not thinking about the symptoms. It is my understanding all of the gaba drug family is an antiseizure med and off label it is used for neuropathy.

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retired123 | @retired123 | May 1, 2022
In reply to @ubelinda "What is NB-E6? Where can I get it? Thanks Ubelinda" + (show)
@ubelinda

What is NB-E6? Where can I get it? Thanks
Ubelinda

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It requires a doctor's order. You can read about it at their website EBMmedical.com

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bcool123 | @bcool123 | May 2, 2022

John, I looked into the P5 25 but I have total urinary incontinence and have had for 20 years so I just cannot drink as much water as that program requires. Too bad I will try it. Going to try this evening primrose oil. Appreciate all of your info, bcool123

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stefspad | @stefspad | May 16, 2022
In reply to @johnbishop "Hi @lisette43 -- Yes, I'm still on the protocol. I have a week or so left..." + (show)
@johnbishop

Hi @lisette43 -- Yes, I'm still on the protocol. I have a week or so left of the older 525 protocol and have my first order of the 2022 version to start on. I like the changes that were made, especially switching to the B12 lipsomal tablets for better bioavailability. I also like the change to Flaxseed Oil capsules which I used to take before starting the protocol. To make it easier for me, I have 3 larger 1-week pill cases and mark them AM, NOON, PM which I fill from the protocol bottles once a week on Sunday. The old version had Protocol 525 labeled proprietary bottles and the new version consists of bottles for each supplement from different manufacturers of good quality supplements. It reminds me of when I first started the protocol in 2016 and we use a frequently updated list of links for purchasing each of the supplements for the protocol from Amazon and sometimes direct from the manufacturer. Amazon provided the 2 day shipping which was helpful because we didn't order all of the supplements at the same time since each supplement had a different number of capsules so you didn't run out of all of them at the same time. Ordering was always on your mind and planning so you didn't run out was sometimes a problem. I like that I can get a months supply at a time or several months or autoship if I prefer.

Here's what's new...
"In January 2022, the new improved Protocol was introduced with the following changes:
We have replaced the Fish Oil / D3 capsule combination, added a 1000 mg Flaxseed Oil capsule (x2 daily) in its place – Flaxseed Oil is a vital plant-based source of Omega 3, 6 & 9 who’s essential fatty acids, unlike ALL others, most resemble that of Organic Hemp Seed Oil. We have returned to the B12 cobalamin sublingual lozenges containing Folate that you dissolve under your tongue for the greatest oral B12 absorption and bioavailability. We have moved K2 to the Midday position separating it by a couple of hours from D3, again for greater bioavailability and the Chelated Magnesium Glycinate content is being reduced from 400 to 200mg daily, 1 AM/ 1PM."

Edited my reply...Missed this note that the different labelled bottles are temporary - "We expect the NEW blended version of the Protocol to be available in mid 2022. BEST OF OUTCOMES!"
-- https://theprotocol525.com/products/the-protocol-525/

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How do I "ramp up?" Thanks.

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | May 16, 2022
In reply to @stefspad "How do I "ramp up?" Thanks." + (show)
@stefspad

How do I "ramp up?" Thanks.

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@stefspad - The Facebook group has ramp up instructions for the R-ALA in a file you can download from the group. I've uploaded it here for your convenience. I didn't have to do the ramp up myself as I was already use to taking the daily dose of R-ALA before I started the protocol. Basically the purpose of ramping up is to prevent stomach issues some people have with taking a high amount of R-ALA (my words).

Shared files

RAMP UP (RAMP-UP.pdf)

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