← Return to PMR: Are there treatment alternatives to Prednisone?

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@minijohn

Hey mikeshell,
After dealing with a great deal of discomfort in my upper legs and upper torso for a number of months, I was eventually diagnosed with PMR in July 2020. I received almost immediate relief from a 20mg dose of prednisone and started a 10-month taper. Fortunately I experienced only minimal side effects from the prednisone (mostly some weight gain). Near the end of my taper, some of the discomfort returned, but not nearly at the level I had experienced earlier. About a month after weaning off the prednisone, I began to experience mild headaches and some jaw discomfort. After doing some research, I decided I should see a rheumatologist, made the appointment, and within days was diagnosed with Giant Cell Arteritis in June 2021. At that point I started another 10-month prednisone taper and also began receiving monthly infusions of Actemra. If you would like to connect with others in your situation, I would also suggest you visit: https://www.vasculitisfoundation.org

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Replies to "Hey mikeshell, After dealing with a great deal of discomfort in my upper legs and upper..."

Welcome @minijohn, Thank you for sharing your experience with PMR and GCA. It is really helpful to learn from the experience of other members with PMR and associated conditions like GCA. There are some other discussions you might also find helpful.

-- PMR connection to GCA: https://connect.mayoclinic.org/discussion/pmr-connection-to-gca/
-- GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica): https://connect.mayoclinic.org/discussion/temporal-arteritis-1/
-- Medications for Temporal Arteritis/Giant Cell Arteritis (GCA): https://connect.mayoclinic.org/discussion/temperol-arteritis-or-giant-cell-arteritis/

Do you mind sharing how you found Connect, were you searching for answers for any specific questions?

This is scary!

2 yrs with PMR. I’m concerned about getting Giant Cell Arteritis, my right jaw has felt like I was hit in the jaw. Do you think I should have this check out more throughly?