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Has anyone had IVIG Infusions for Neuropathy?
Neuropathy | Last Active: Oct 3 7:57am | Replies (491)Comment receiving replies
Hi - I’m curious how one can test for CIPD? For my idiopathic neuropathy, my original doc and Duke said “most likely” a post infection but negative for Guillain-Barre (my sudden onset of PN was accompanied by UTI and kidney infection 5 yrs ago). They wanted to watch and see how I progressed, but I moved away after a few years. However, current doctor in new place says IVIG can’t be done because “we don’t know for sure”.
For a host of other reasons, I pray to be re-assigned to another Neurologist in our system soon (well I’ll have a new one in or out of current system either way) - I’d like to have good questions for him about exploring CIPD and the possibility of IVIG providing benefit. Thanks for any thoughts, and good luck with treatment!
Replies to "Hi - I’m curious how one can test for CIPD? For my idiopathic neuropathy, my original..."
Were you given the antibiotic Cipro for the kidney infection and UTI? Cipro carries a boxed warning from the FDA that it can cause peripheral neuropathy.
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My recommendation to anyone in your situation is to go to Mayo.
There is no test for CIDP, and there are other disorders with similar symptoms so it is difficult to diagnose. A nerve biopsy is helpful, but has risks. I had been going to Hopkins for years, seeing one of the top guys in the field, and had two biopsies, and he continued to classify it as ideopathic, while suggesting CIDP as a possibility. It was only when I went to Mayo that they were fairly certain -- maybe 90% After I responded to IvIg, they were 99% certain.
But everyone's situation is different. And yours sounds quite different than mine, with sudden onset and other things happening at the same time. Good luck to you.