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Has anyone else been diagnosed with an endolymphatic sac tumor?
Brain Tumor | Last Active: Mar 16, 2023 | Replies (28)Comment receiving replies
Welcome @jodocybb51. I can imagine that you have many questions. Luckily @kfox7818 recently joined the forum and has had surgery for endolymphatic sac tumor multiple times. I'm sure she can share more about her experience. Hopefully @scottjg984 @sunshine80 @kayjaylauren and others will add their experiences too.
Jodo, have you considered getting a second opinion?
Replies to "Welcome @jodocybb51. I can imagine that you have many questions. Luckily @kfox7818 recently joined the forum..."
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Actually my doctor sent my cat scan and mri to a doctor in Los Angeles and one at Rutgers for their opinions. The LA doctor agreed it that it was better to wait and see what the next mri shows and the doctor at Rutgers said he would consider surgery right away. So I guess for now I wait until the mri in June. I am very nervous about the surgery. Although it is inevitable at some point.