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DiscussionMy Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 7 hours ago | Replies (584)Comment receiving replies
Replies to "Hi Lori, Just wanted to update re: husband's upcoming BMT. He is scheduled for a splenectomy..."
Good morning! Well, gosh, that’s not the news you wanted with the Jakafi not doing the job. But plan B should get your husband to the point of transplant. ☺️
I’m so happy to hear you found such a nice place to live near the clinic where you can bring your furry baby along! That has to be a huge relief for you. I’m trying to think of other things you might need. My stay was at a hotel so there were a number of extra things I brought along that you won’t need if you have a house.
We drove to Rochester so we weren’t limited with room. Not sure if you’re flying or driving but that might impact what you arrive with.
I’m assuming all the basic amenities are in the house already such as utensils, plates, etc. but bring items that you use on a daily or weekly basis that you won’t have in Rochester at your reach.
Rochester is a nice medium sized city with a lot of grocery stores, restaurants, etc. with delivery!!
So make a list of what you might miss if you’re not home for 3-4 months. Pills for sure, address book, stamps, envelopes, laptops, iPad, phones, chargers, extra prescription glasses. I also tossed in a small extension cord for my hospital stay so I could charge my phone and iPad in my bed.
Bedroom slippers for your husband and pajamas/sweat pants. Something comfortable…trust me. And his own little blanket/throw.
Forward your mail from the post office and sign up for the free service from USPS for previewing your mail so you can see what is being delivered each day if you need to check for bills.
We brought along some favorite food prep knives, some dried herbs/spices from our home so we didn’t have to buy everything new. But there’s a really nice HY-Vee grocery not far from the clinic where you can get everything you need and Fresh Thyme that has really good fish and fresh foods.
You’ll be there from July into the early/later autumn so keep that in mind when packing clothing. Summer is hot and humid in Rochester and then gets chilly in the fall. Raincoats/jackets/caps/hats for trips back and forth to the clinic on nasty days.
If you drive to the clinic daily, you’ll be able to duck into a tunnel system from most parking ramps so that’s out of the elements.
Getting to the nitty gritty. Your husband will be seriously immuno-compromised after the transplant and will need to be in as clean of an environment as possible.
He will have several educational classes before transplant to help guide you both about foods to eat, food prep and handling, and also a safe living environment.
He’ll be wearing a mask all the time for several months! With a dog, he may have to limit petting. But keep sanitizer handy.
When you move in:
Bring sanitizing wipes and hand sanitizer to get you started, then make sure they’re on your shopping list.
What I would suggest, even though the house will no doubt been cleaned, is to disinfect all the horizontal surfaces again, such as doorknobs, remotes, light switches, countertops, refrigerator and microwave door handles, bathroom…
Take all the dishes from the cabinets and put through the dishwasher again so that you know it’s been done.
I brought a supply of our own dish cloths and towels from home. I’m really picky and felt I had a level of control of cleanliness. I also brought our own facial wash cloths.
A suggestion to bring a Brita water pitcher/filters. Rochester’s water is fine, just heavily chlorinated and I didn’t like the taste.
Is this a 1 or 2 bathroom house? If you’re sharing (or not) the bathroom with your husband during his recovery, it needs to be squeaky clean. And he should not be cleaning it at this time. It’s good to purchase a new toilet brush and Clorox bowl cleaner and keep the Lysol wipes handy for touch ups.
Molds and fungus are problematic for newly transplanted patients so make sure the shower curtain is free of mold.
I know I tossed a lot at you on general information.
Do you have any specific questions?