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Has anyone had IVIG Infusions for Neuropathy?
Neuropathy | Last Active: Oct 3 7:57am | Replies (491)Comment receiving replies
I've been getting IvIg infusions for over two years. I was diagnosed with ideopathic PN for many years, and finally Mayo said it was likely CIDP and recommended IvIg. It's been very helpful. Because the progression was over 30 years, we didn't expect dramatic improvement, but there has been some improvement. Without it, I'd be headed for a wheelchair. The only times I've had adverse reactions was when the infusion was within days of a Covid vaccine or booster, so the lesson there is: don't do them too close together.
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Hi - I’m curious how one can test for CIPD? For my idiopathic neuropathy, my original doc and Duke said “most likely” a post infection but negative for Guillain-Barre (my sudden onset of PN was accompanied by UTI and kidney infection 5 yrs ago). They wanted to watch and see how I progressed, but I moved away after a few years. However, current doctor in new place says IVIG can’t be done because “we don’t know for sure”.
For a host of other reasons, I pray to be re-assigned to another Neurologist in our system soon (well I’ll have a new one in or out of current system either way) - I’d like to have good questions for him about exploring CIPD and the possibility of IVIG providing benefit. Thanks for any thoughts, and good luck with treatment!