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Feeling helpless
Hello back in 2012 I started off with pain in my back n then my legs n then over time it’s gone to all my joints including my hands and now getting sharp pains in my head n facial numbness. I have had high platelets since 2015 535. I have had positive Ana as well . About 6 months found out had hyperthyroidism n several thyroid nodules. Last 3 months I’m barely able to walk , I get severe pain in my head ,numbness n numbness in the face . They say it’s the occipital nerve. Year ago my mri showing few flair hypertensives. I also suffer severe itching at times all over, I am losing my hair . My ferritin levels n cholesterol levels are very high as well.
I am 52 years old. I am tired of this pain tired of not getting answers . I’m losing time in life n with my grandchildren, I am suffering depression now due to this . I do not receive any pain Medication , I lay awake in tears half of the night . I woke one more couldn’t move right leg was ice cold n they tell me it’s a strain. I suffer from disc degenerative disease bin my neck as well C 3,4,5,6,7 n also in spine n lower back .. OA IN MY KNEES N MY FEET .. I feel I am not getting any answers on anything .. any suggestions Thank you
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So, true.. I wrote my Senator warning of all the unintended consequesnces of shuting everyone off for the high profile problems of some. I listed all the issues that would happen..i.e street drugs, alcohol abuse, suicide... I received a canned answer that was meant to justify what they had do to themselves. I knew then that my condition would never return me to my former health. and was in pain all the time.. I did what had killed others, I survived it.. and gradually over the years I used a self designed weight training and martial arts program to rehab without the help of the so called experts. Many of those that haven't and are out in the could now suffer from another medical and political failure. Over 100 thousand people have died in the last year due to fentanyl.. fentenyl that those same politicians refuse to stop from coming over an open border...It is absolutely disgraceful... It is not a ew phenomenum however it is one that is on steroids now... and is so unnecessary. Doctors spend years becoming doctors... They have the expertise to know who needs opiate and whose playing them... They also know thatr very often they don't have to take the patients word. In my case. there were eventually over a dozen MRI's of various kinds in the record.. The proof of my particular condition was right in front of them and they knew it. But because of politics putting pressure on the medical system.. they opted to do the wrong thing and scoop all patients up in the same basket... assumed liar even if the film proves otherwise.. I no longer use painkillers either, and haven't for 9 years... but , I ccould have very easily became a casuality because of blanket decisions and I know people who were.
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5 ReactionsDo a bit of research around costochondritis and brachial plexopathy. Pain in those areas can mimic cardiac-related pain. Costochondritis can affect the xiphoid which can cause tension in the diaphragm area, which can cause GERD-like symptoms and shortness of breath.
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1 ReactionI have researched it as well as several dozen other things.. and do consider it a distinct possibility. I think I stated that I am a weight lifter and martial arts enthusiast and have been since I was 15.. At my age (67) I still train high intensity and heavy weight and have not lost much in terms of strength sine I was 35 or so... That combined with spinal problems undoubedly can cause inflammation. I have just always felt that stopping training is a worse option than continuing and again at my age, once you stop it is really hard to get started and back up to where you were.. Hadn't thought of brachial plexopathy .. and if I am not mistaken autoimmune can play a role in that... I have suspected for at least a decade or so about autoimmune issues. but it seems all but impossible to get a docs attention particularly as an older individual. The problem with a ot of health issues I have had is that I simply do not look the part..perception becomes reality . hence most docs discount it .
Ask them to do heart catherlizatiin, n sounds could be costochondritis in the chest . You get it from smoking , I use to get that n muscle swell in chest it’s very painful.i wish you the best
Because I am recovering addict and my charts shows it .. been clean 14 years. But my choice and I can’t suffer pain .. this why ppl turn to street drugs .
I was in very abusive relationship n also in 4 wheeler accident.
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1 ReactionNow my platelets are up to almost 600 thousand. I also suffer from Graves’ disease.
Hello, yes feel misdiagnosed.. I have had postive ANA TESTING SINCE 2015 n platelets been up since then .They keep getting higher . I get sores on my body n my mouth .. I believe it lupus ..but at the time of appointments I don’t have sign . My sister has it n fibromyalgia runs in. My family.Below I posted the sores I get . I feel as nobody listens .. even my neurologist don’t understand why the platelets so high n dr not doing nothing n my ferritin very high , overload of iron.
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1 ReactionBless your heart! You are very wise indeed. And brave.
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1 ReactionThank you ..
My own experience is that seeking the correct diagnosis is twisting maze of doctors and test. However, have you seen a Hematologist?