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Just diagnosed with gastroesophageal adenocarcinoma. Very scared

Posted by skwwatkins @skwwatkins, Aug 5, 2021

My husband was just diagnosed with gastroesophageal adenocarcinoma. We are very scared. Second opinion. And has anyone had this.

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ilovema1234 | @ilovema1234 | Apr 27, 2022

We just found out my elderly mother that is full of life. Has stomach cancer and feelers are moving up her esophagus. She is married to a wonderful man, my sis and I are doing our best to comprehend it all. Hospice has come and what a wonderful thing. My whole body and mind is filled with fear. And my momma is very scared , like she says sadly " who wouldn't be scared" I hope that I am on the right comment section. Ty

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1 reply
mindyt | @mindyt | Apr 28, 2022

Hello Ty,
I can suggest try to always get second opinions and get permission for your sister or you to go with her to her appointments- it’s weird but it helps the Drs see family around supporting. Keep the home health care coming as long as you can. Remember that you and your sister being there is the best medicine and helping her to not get overwhelmed.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 28, 2022
In reply to @ilovema1234 "We just found out my elderly mother that is full of life. Has stomach cancer and..." + (show)
@ilovema1234

We just found out my elderly mother that is full of life. Has stomach cancer and feelers are moving up her esophagus. She is married to a wonderful man, my sis and I are doing our best to comprehend it all. Hospice has come and what a wonderful thing. My whole body and mind is filled with fear. And my momma is very scared , like she says sadly " who wouldn't be scared" I hope that I am on the right comment section. Ty

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@ilovema1234, I'd like to add my welcome along with @mindyt. I'm so glad that you and your family have hospice involved. They will take care of the medical caregiving so that you and your sister can be daughters and spend loving time with your mom.

Does your mom have pain? Are any treatments being offered to help make her confortable? Do you live close to your mom?

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1 reply
ilovema1234 | @ilovema1234 | Apr 28, 2022
In reply to @colleenyoung "@ilovema1234, I'd like to add my welcome along with @mindyt. I'm so glad that you and..." + (show)
@colleenyoung

@ilovema1234, I'd like to add my welcome along with @mindyt. I'm so glad that you and your family have hospice involved. They will take care of the medical caregiving so that you and your sister can be daughters and spend loving time with your mom.

Does your mom have pain? Are any treatments being offered to help make her confortable? Do you live close to your mom?

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Yes we live close by, thank God. Everthing makes me cry, and people say we'll she is 85 y old. Momma is momma young or old. She's getting sever acid reflux. Things are moving to quickly. Hospice is ready. Ty and hugs for responding

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 29, 2022
In reply to @ilovema1234 "Yes we live close by, thank God. Everthing makes me cry, and people say we'll she..." + (show)
@ilovema1234

Yes we live close by, thank God. Everthing makes me cry, and people say we'll she is 85 y old. Momma is momma young or old. She's getting sever acid reflux. Things are moving to quickly. Hospice is ready. Ty and hugs for responding

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A momma is always a momma, and you'll always be the daughter. I hope you can hold her close and be kind to yourself.

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1 reply
ilovema1234 | @ilovema1234 | Apr 29, 2022
In reply to @colleenyoung "A momma is always a momma, and you'll always be the daughter. I hope you can..." + (show)
@colleenyoung

A momma is always a momma, and you'll always be the daughter. I hope you can hold her close and be kind to yourself.

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Thank you kind lady.

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agould105 | @agould105 | May 5, 2022

How are you doing now? I noticed that your comment was dated in 2021.
My husband was diagnosed in September 2021. We felt very confident with our medical team and they didn’t waste any time getting him into chemo and radiation. He had the complete esophagus removed March 8 and we’re dealing with some issues.

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agould105 | @agould105 | May 8, 2022
In reply to @davevb "I was diagnosed with esophageal adenocarcinoma I February of this year. 2 and a half weeks..." + (show)
@davevb

I was diagnosed with esophageal adenocarcinoma I February of this year. 2 and a half weeks ago I finished last chemo and radiation. I had several side effects the worst of which was spasms in my esophagus(very painful). Others were neuropathy, fatigue, loss of appetite, eating and drinking especially are painful. I am starting to recover from them thankfully, the spasms in particular. Good old Tylenol has been my most effective med to combat pain. Also Lidocaine, cough drops, vitamins and minerals. Going to have my esophagus taken out August 25. The last ct/pet scan showed no cancer which doesn’t necessarily mean there couldn’t be a little hiding somewhere because the scan does not pick up very small infections of cancer. Nevertheless the cancer is 99% gone at this point. I am trusting the Lord that the operation will go well and that the cancer is gone for good.

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I would love to know how you were doing now after the surgery. My husband had his entire esophagus removed March 8 and unfortunately he has had many complications particularly a stricture in his throat that food and medication have lodged in and eroded. He is back to all liquids for a couple of weeks and we hope this takes care of it.

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rexsan20 | @rexsan20 | May 12, 2022
In reply to @colleenyoung "Hi @skwwatkins and welcome to Mayo Clinic Connect. I moved your message to the Esophageal Cancer..." + (show)
@colleenyoung

Hi @skwwatkins and welcome to Mayo Clinic Connect. I moved your message to the Esophageal Cancer group https://connect.mayoclinic.org/group/esophageal-cancer/ so that you can connect with other members who have experience with gastroesophageal adenocarcinoma like @survivorsuz @puprluvr @karly @davevb @margaretdv @lori57216. It can really help to talk with others.

I can image that you and your husband are scared. You mention that you are considering a second opinion. Mayo Clinic recently published a study about the advantages of second opinions. You can read more here:
- Mayo Clinic researchers demonstrate value of second opinions https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-researchers-demonstrate-value-of-second-opinions/

Are you considering a second opinion at Mayo Clinic? Has a treatment plan been suggested for your husband yet?

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I have barretts esophagus. My nose is so DRY!!!!!Is it okay to use Saline Solution in the nose. I have very dry nose, eyes , and mouth

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | May 14, 2022
In reply to @rexsan20 "I have barretts esophagus. My nose is so DRY!!!!!Is it okay to use Saline Solution in..." + (show)
@rexsan20

I have barretts esophagus. My nose is so DRY!!!!!Is it okay to use Saline Solution in the nose. I have very dry nose, eyes , and mouth

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@rexsan20, that sounds like a question best asked of your doctor. Might your dry nose, eyes and mouth be caused from another underlying issue like Sjogren's that requires investigating?

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