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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)
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@saki

I have just joined this group and would be grateful for any information regarding scalp neuropathy. I was not given anything further than the diagnosis and haven't been able to find much more. I only know that there is little feeling in some small areas of my scalp and I'm losing my hair. I'd appreciate any information anyone might have to pass along.

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Replies to "I have just joined this group and would be grateful for any information regarding scalp neuropathy...."
John, Volunteer Mentor | @johnbishop | Apr 28, 2022

Welcome @saki, Although I have neuropathy I don't have any experience with scalp neuropathy but did find some information on the topic.

"Can you get neuropathy on your scalp?
Structural changes in scalp epidermal and dermal nerve fibres were discovered in a skin biopsy, suggesting that small-fibre neuropathy associated with scalp pruritus may be a manifestation of the DM syndrome." --- Small-fibre neuropathy in a patient with dermatomyositis and severe scalp pruritus: https://pubmed.ncbi.nlm.nih.gov/27088428/

There are a couple of other sites that might be helpful for learning more and what treatments are available:
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

It sounds like you don't feeling any pain or tingling in the scalp, is this correct? Did your doctor suggest or mention any treatments that might help?

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