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Feeling tired! Do others with PMR feel significantly more tired?
Polymyalgia Rheumatica (PMR) | Last Active: Jun 1, 2023 | Replies (75)Comment receiving replies
Welcome @lsm47, I haven't had the ACTH test when my PMR was active but did have some minor fatigue. I'm hoping others with similar experiences will be able to share them with you.
I did find some related information that I think may explain what may be going on. It's also why I think tapering off of prednisone needs to be done slowly.
"Prednisone is similar to cortisol, a hormone naturally made by your adrenal glands. If you take prednisone for more than a few weeks, your adrenal glands decrease cortisol production. A gradual reduction in prednisone dosage gives your adrenal glands time to resume their normal function." --- STEROIDS & Adrenal Suppression (PDF file) - https://aiunited.org/wp-content/uploads/STEROIDS-ASTHMA.pdf
Did your doctor explain the details of what wasn't working correctly with the adrenal glands?
Replies to "Welcome @lsm47, I haven't had the ACTH test when my PMR was active but did have..."
Thank you John for the info.
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The doctor really didn’t explain much to me. She did say that one has to get off prednisone very slowly and that sometimes has to be on prednisone forever. I have an appointment with another endocrinologist and my rheumatologist in mid-October.