Very, very scared to have knee surgery and hip surgery

Posted by cindiwass @cindiwass, Jul 6, 2021

I am in constant pain, usually when I walk or stand, knee and hip. Of course, when I am on my recliner I'm not in much pain so I stay there a lot. I used to swim until about 5 years ago, but I notice the hip pain was even worse after I swam.
When I was much younger (I'm 77) I had a torn cartilage (basketball game where some kind soul [yes, sarcasm] pushed me down), and subsequently the cartilage was removed. That's what I remember the doctor told me. I was young (16) and healthy, I recovered quickly enough, but had swelling and trouble for years until finally it became unbearable. I would get cortisone shots lbut eventually stopped doing that. (They were painful anyway.) But about 5 years ago, pain extended to my right hip, excrutiating, more so than the knee. (Don't know why.) I've seen several doctors and they all tell me to get hip and knee replacement. I am scared. But the problem I'm having now is that the doctors (I've seen quite a few) all tell me that I need to have a replacement, that I have arthritis. One doctor got upset when I asked him for more detailed information. And I didn't know how to ask the surgeon for detailed info, like what would he do and could he please explain what the x-rays showed. (Also, why do I have pain?) But the pain really impedes me from living a normal life, that is, cleaning, organizing, straightening up, etc. I made an appointment with a surgeon near enough who has a reputation of being very kind and compassionate. So I hope he'll bear with my questions.

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@deemariienc

Dear friend,
If you are in unbearable pain in hip and/or knee and they are SURE it is an arthritic joint, then consider joint replacement. If pain is on your right side only correcting one joint may fix the other one also.
I understand your fear. It is very scary. After wits end with arthritic pain I had both knees replaced 6 months ago to the day.
Results? Well, no more arthritis pain and can certainly stand and walk for much longer than before. But the healing takes a loooong time. My knees are still very stiff, my balance is not great, and won’t be going on any hikes. I’ve been told now it takes a year. Was it worth it? The jury is out on that still. It’s a horrible operation and last resort imho. So, take joint replacement under serious consideration. It is not easy. It hurts a lot. Good luck you and blessings.

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I had my left knee replacement 7 years ago. It is still swollen and painful. Had a second opinion and was told that 20% of knee replacements do not take and I am one of those.. I am in late stage 4 of CKD so I believe that no surgeon would operate on my knee now. All I can say, do your exercises before and after and you will be fine also check out your surgeon. Make sure you are comfortable with him/her,

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@sueinmn

Hi Cindi - I have a LOoong track record of orthopedic surgeries, going back 25 years, and with six different orthopedic surgeons. I have also had somewhere near a dozen other surgeries by 7-8 docs.
Something my primary doc told me before my first ortho surgery (her husband was a surgeon) was not to expect "warm and fuzzy" from any surgeon - that "many, if not most, prefer their patients unconscious" - then she laughed, but I have found the statement is more true than not!
One of my surgeons actually left the room and let his PA explain the procedure, another simply handed me a written explanation. If I wasn't an assertive patient, no questions might have been answered.

Here is what I do now whenever seeing an unfamiliar doc:
Write down the reason for the visit
Write all my questions checklist style on a small pad, with room to write answers alongside.
Listen carefully to the doc's initial explanation without interrupting or writing anything (active listening)
Look at my list and see if there are still unanswered questions. If so, ask them and insist on answers.
After the visit, sit down in the waiting area & go over notes, see if I have any follow-up questions. If the doctor has an on-line communication portal, I send a message when I get home. If not I write them down & ask the front desk to give them to the doctor or his nurse for a follow-up call.

To answer your question about how many times I see a surgeon before an operation - usually once, when it is proposed and explained, unless it is something where we are trying to decide between surgery and more conservative treatment.

Having had bilateral hip surgeries twice, I would recommend that you give your body enough time between operations to recover - I had one set of hip surgeries 6 weeks apart (TOO close!) and one set about 4 months (worked for me.) And be ready to work at your recovery - the more you follow the multiple times daily stretching & strengthening protocols, along with ice, intermittent rest, etc, the better you will do.

If a half dozen doctors have given you the same answer about needing surgeries, it is time to choose one and get started. This will give you, and not your pain, control of your life.

If you still feel paralyzed by your fears, maybe you need to talk to a counselor or therapist to get to "Go" ?
Sue

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Hi, I know it's been a while but I want to answer. I am scheduled (finally!) for hip surgery tomorrow. Yayy! The surgeon has a stellar reputation, came into the room and spoke to me no longer than 10 minutes, the only question I had was about my blood pressure being too high (for which another surgeon refused to take me until it came down). This surgeon said don't worry, anesthesia will take it down anyway! I'm getting hip numbing anesthesia, he told me anyway I wouldn't remember a thing. I''m not too happy about that -- but at this point point I want to get it over with and hope it 'works,' since I am unable to function with all the pain.
Take care.

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@mariechandler

I had my left knee replacement 7 years ago. It is still swollen and painful. Had a second opinion and was told that 20% of knee replacements do not take and I am one of those.. I am in late stage 4 of CKD so I believe that no surgeon would operate on my knee now. All I can say, do your exercises before and after and you will be fine also check out your surgeon. Make sure you are comfortable with him/her,

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So sorry about your knee.

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@sueinmn

Hi Cindi - I have a LOoong track record of orthopedic surgeries, going back 25 years, and with six different orthopedic surgeons. I have also had somewhere near a dozen other surgeries by 7-8 docs.
Something my primary doc told me before my first ortho surgery (her husband was a surgeon) was not to expect "warm and fuzzy" from any surgeon - that "many, if not most, prefer their patients unconscious" - then she laughed, but I have found the statement is more true than not!
One of my surgeons actually left the room and let his PA explain the procedure, another simply handed me a written explanation. If I wasn't an assertive patient, no questions might have been answered.

Here is what I do now whenever seeing an unfamiliar doc:
Write down the reason for the visit
Write all my questions checklist style on a small pad, with room to write answers alongside.
Listen carefully to the doc's initial explanation without interrupting or writing anything (active listening)
Look at my list and see if there are still unanswered questions. If so, ask them and insist on answers.
After the visit, sit down in the waiting area & go over notes, see if I have any follow-up questions. If the doctor has an on-line communication portal, I send a message when I get home. If not I write them down & ask the front desk to give them to the doctor or his nurse for a follow-up call.

To answer your question about how many times I see a surgeon before an operation - usually once, when it is proposed and explained, unless it is something where we are trying to decide between surgery and more conservative treatment.

Having had bilateral hip surgeries twice, I would recommend that you give your body enough time between operations to recover - I had one set of hip surgeries 6 weeks apart (TOO close!) and one set about 4 months (worked for me.) And be ready to work at your recovery - the more you follow the multiple times daily stretching & strengthening protocols, along with ice, intermittent rest, etc, the better you will do.

If a half dozen doctors have given you the same answer about needing surgeries, it is time to choose one and get started. This will give you, and not your pain, control of your life.

If you still feel paralyzed by your fears, maybe you need to talk to a counselor or therapist to get to "Go" ?
Sue

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The last surgeon virtually threw me out of the room because I questioned him about something wrong with his eye. (wow.) But he was also brutal in telling me about the pain I would have after the operation. (Glad he threw me out...)
So I guess I probably won't do that again with a doctor. ? Or anyone maybe about telling them about a bloodshot eye.
Meantime I found a surgeon with an absolutely fantastic reputation and am having the surgery done tomorrow I couldn't stand the pain and of course, I hope it goes well.

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@janete718

I had a TKR in December . I had a fractured knee cap 41 years ago . I was 19 and suffered . They said they couldn’t do anything . My surgeon now is awesome . I’m a slow healer and had to go to therapy for almost 4 months but now I’m doing better than I can ever remember doing. I won’t lie. The first 3 weeks were bad pain wise. Physical therapy was hard but I did my exercises everyday and I still am . As scary as it was and I was terrified, I’m getting my other one done close to the end of the year . I can’t do it now because of insurance won’t cover more therapy yet. I couldn’t do anything before, I dragged my leg kind of when walking , couldn’t clean , nothing . Now I can do most things in moderation. My knee bend was slow but I stayed persistent and it is a mind set . Do it …. Get your life back. It will take time to heal but it’s worth it. My left knee and leg are pain free. First time in 41 years . The key is to move and do therapy exercises to build your muscles .

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Thanks, glad things were working out and hope they still are. I just had the hip replacement surgery and am 4th day into it. Very painful so far, but naturally hoping I can make a good recovery. Hope you're doing well.

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@mariechandler

I had my left knee replacement 7 years ago. It is still swollen and painful. Had a second opinion and was told that 20% of knee replacements do not take and I am one of those.. I am in late stage 4 of CKD so I believe that no surgeon would operate on my knee now. All I can say, do your exercises before and after and you will be fine also check out your surgeon. Make sure you are comfortable with him/her,

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Just wondering how you're getting along. Do you use walker? Cane?

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For the people who posted here about uncommunicative surgeons - find someone else. These people can be great at what they do but they are not gods. You deserve to be informed and treated well.

As for anyone considering a TKR, get in shape before the surgery and follow PT instructions post-op to the letter.

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@cindiwass

Hi, I know it's been a while but I want to answer. I am scheduled (finally!) for hip surgery tomorrow. Yayy! The surgeon has a stellar reputation, came into the room and spoke to me no longer than 10 minutes, the only question I had was about my blood pressure being too high (for which another surgeon refused to take me until it came down). This surgeon said don't worry, anesthesia will take it down anyway! I'm getting hip numbing anesthesia, he told me anyway I wouldn't remember a thing. I''m not too happy about that -- but at this point point I want to get it over with and hope it 'works,' since I am unable to function with all the pain.
Take care.

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You go girl. You won’t be sorry. I’ve had right hip and left knee in the last year. Getting left knee in November. SOOOOO worth it!!! The surgical pain is nothing compared to the pain we live with every day. You will be so happy. I won’t kid you - especially with knee - first week is hard. But they give you lots of good drugs to get through it. I’d do it again in a heartbeat. Actually, I AM DOING IT AGAIN - IN 2 MONTHS! Hahaha. Good luck!

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@stephdoug123

You go girl. You won’t be sorry. I’ve had right hip and left knee in the last year. Getting left knee in November. SOOOOO worth it!!! The surgical pain is nothing compared to the pain we live with every day. You will be so happy. I won’t kid you - especially with knee - first week is hard. But they give you lots of good drugs to get through it. I’d do it again in a heartbeat. Actually, I AM DOING IT AGAIN - IN 2 MONTHS! Hahaha. Good luck!

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I am truly impressed AND encouraged by your post. I needed it. It's been unnerving (maybe literally?) recovering from the surgery. I hear the surgeon is excellent, but it seems he doesn't want to answer any questions, everything is handed over to his office or whatever...I spoke to my general nurse practitioner who is kindly interested in my case, trying to encourage me -- I AM after all, an older gal and he, too, has expressed happiness that I actually went through with it. But right now I'm in a lot of pain when I walk, try to stand up, pick up the leg (I can't), so I'm waiting for the PT who hopefully will come today. I did take a few narcotics but they made me sick and I don't like the reaction, so I ordered turmeric gummies which hopefully will reduce some inflammation.
Anyway, thanks for your post, yes I heard the knee is hard-er than the hip, let's see if I get over the hip thing. Take care, thanks for answering.

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@heyjoe415

For the people who posted here about uncommunicative surgeons - find someone else. These people can be great at what they do but they are not gods. You deserve to be informed and treated well.

As for anyone considering a TKR, get in shape before the surgery and follow PT instructions post-op to the letter.

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Yes, well it's a little late for that -- I MIGHT try to annoy him tomorrow and call his office to ask a few questions -- he's supposed to be great at surgery, but ridiculous when it comes to holding one's hand after the event. The PT is coming tomorrow, but I do have a question about why my thigh hurts so much, I can't lift it up at all. The surgery was last Thursday. It would be nice if the surgeon could actually care enough to explain. I hate to give a good craftsman like that a bad review, he has HUNDREDS of 5-star reviews, but--nevertheless--the aftercare personally from him tells me he's probably just too busy to spend much time after the operation.

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