Triple Negative Breast Cancer: What treatments are you having?
I have just been diagnosed with Triple Negative Breast Cancer after having Estrogen Positive Breast Cancer for 21 years. Is anyone familiar with this diagnosis and treatment that you are having for it?
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I can only tell you what my experiences were with chemo that had these same side effects. There was not the effective drugs for nausea that they have now. So that was a bigger problem. The constipation became a huge problem and continued for years after my initial chemo. If you can stomach it, whole grain oatmeal every day will help this, it might or might not be enough. I now mix up whole grain rolled oats and milk and kefir, add some blueberries and a touch of honey, I refrigerate over night and eat cold in the morning.
You can ask your oncology doctor for a consult with a nutritionist specializing in oncology if there is one in your area. They will have more tips and tricks for you to use. How are you feeling after your first treatment?
I need to add that the NCCN guideline that the oncologist cites and printed from the NCCN guidelines for protocol was for a stage 1 estrogen positive cancer with negative sentinel node biopsy and clean margin lumpectomy. I don't want to inadvertently misinformed anyone.
I've tried to navigate thr NCCN website to give the URL but find it not user-friendly.
Interestingly, Mayo Clinic is one of the participants in this national partnership of cancer treatment centers working to continue to update recommended protocols as they become the current standard.
Thank you for your tips on constipation. I will try it one day soon! I will check on the nutritionist at my chemo center. It wasn’t too bad yesterday. Fatigue has really hit me hard especially today…So I took it easy all day zzzzz
For reoccurrences, they usually use Gemzar and Carboplatin and I had my 1st treatment yesterday and it wasn’t too bad.
My reoccurrence showed up from my ultrasound not mammogram. It was found in the fibroadipose tissue, localized (1.5cm) and they removed that with my Level 1 and 2 lymph nodes. It was right next to my lumpectomy. Thank you very much🥰
I read where a dermatologist recommended cream, lotion, etc., with a high urea content to help feet slough off thick skin. (He was arguing against the filing gadgets used in spas as he's seeing a lot of foot infections.) But the urea helps healthy skin shed the dead layers. One mentioned as inexpensive, easily-available and effective is Heel Balm.
What type of breast cancer do you have? I’m glad the treatment wasn’t bad for you.
I have TNBC for my 2nd time in 2 and 1/2 years. So far this chemo protocol isn’t too bad (yet)
Did they do radiation on that same site after the lumpectomy? It was suggested that I have post-lumpectomy site-specific radiation as a kind of "clean up the area in case of missed cancer cells" but I was past the 6-week optimal time and declined. I was on the fence about it anyway so likely would have declined but this was an ER+, PR+ HER2- tumor, which I understand is a whole different animal.
Yes I had 4 weeks of rads including 5 boosts. This time I will have 5 weeks of rads with no boosts. The tentative timeframe will be in September. I pray that your cancer doesn’t come back 🙏🏼 I hate cancer 😡