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DiscussionHas anyone else been diagnosed with an endolymphatic sac tumor?
Brain Tumor | Last Active: Mar 16, 2023 | Replies (28)Comment receiving replies
Replies to "I was just diagnosed in January with EST. I have had a cat scan and and..."
@jodocybb51 In exactly the same I feel as if my days are consumed with worrying about it all
Welcome @jodocybb51. I can imagine that you have many questions. Luckily @kfox7818 recently joined the forum and has had surgery for endolymphatic sac tumor multiple times. I'm sure she can share more about her experience. Hopefully @scottjg984 @sunshine80 @kayjaylauren and others will add their experiences too.
Jodo, have you considered getting a second opinion?