← Return to Has anyone else been diagnosed with an endolymphatic sac tumor?

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@jodocybb51

I was just diagnosed in January with EST. I have had a cat scan and and mri. The tumor is small and slow growing. He thinks I should wait and have another mri to see if there has been any changes. The next mri is scheduled for June 29th. He said surgery is risky although at some point it has to come out. But there is so many unknowns. I don’t know what to do. Can you share your experience from diagnosis to surgery?
Thank you.

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Replies to "I was just diagnosed in January with EST. I have had a cat scan and and..."

Welcome @jodocybb51. I can imagine that you have many questions. Luckily @kfox7818 recently joined the forum and has had surgery for endolymphatic sac tumor multiple times. I'm sure she can share more about her experience. Hopefully @scottjg984 @sunshine80 @kayjaylauren and others will add their experiences too.

Jodo, have you considered getting a second opinion?

@jodocybb51 In exactly the same I feel as if my days are consumed with worrying about it all