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Has anyone experienced internal vibrations?

Brain & Nervous System | Last Active: Sep 29 9:08am | Replies (901)

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@tleeflynn

I’ve been dealing with a vibration but it is in my brain back of head/neck & spine& then travels to my arms legs stomach. Depends on how severe it gets. When it gets bad I slow down in all ways my face gets pinkish my nose gets stuffy & runs & I get nauseous & vomit & occasionally it causes a headache because I think the vibration is so severe it’s like trying to escape my body. I’ve seen Neurologist Neurosurgeon Endocrinologist had mris cat scans but nothing. It’s been over 2 & 1/2 years. It affects me all day. I go no where I’m in bed most of the time & it’s mentally & emotionally taking a tone on me. It’s there really right now so bad. I feel no one will ever help me. They want me to see ENT now. I have had Brain surgery 10 yrs ago for A pituitary tumor with Cushing’s disease & a large menengeoma tumer behind my right eye baseball size. & I separately have Gasto issues severe acid reflex IBS spastic colon constipation. My bowel was perforated during a hernia surgery & was septic with peritonitis & died was brought back & wore a colostomy bag for about 2 yrs. It was reversed but a lot of bowel was removed. Because I have been vomiting with severe nausea since this all started I have lost weight & a lot of hair. I can’t sleep for long periods of time. I feel like when I say vibration it’s not taken seriously as if it’s not a big deal. It is it has debilitated me. I’m a prisoner in my home. I never know when it will get severe & start the vomiting. So I don’t want to go out. Now they decided well u probably have Gastroparesis & I need a test done that my insurance doesn’t cover at a bigger university hospital. Either way When they talk about the gastroparesis they stop talking about the vibration! They are connected in some way. The minute a severe one is over & the vibration slows down a bit my nose is perfectly fine no stuffiness no running? I’m sure I went off topic & I didn’t proof read what I wrote. I’m sorry I probably wasted your time. I truly hope u get answers or find a support system. I feel alone & lost. Of course living like this causes anxiety & depression but it is not the culprit. So tired of it being the doctors fall back answer to everything they can’t figure out! God Bless☀️

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Replies to "I’ve been dealing with a vibration but it is in my brain back of head/neck &..."

@tleeflynn Hello there, welcome to Connect. Please do not think you have wasted anyone's time. That's why Mayo Connect is here, to listen, support, and encourage. It's awful when insurance doesn't cover a recommended test. Does your gastro doctor have any other suggestions?

You are right when you say, "living like this causes anxiety an depression". It may not be the only culprit, but it indeed has been scientifically proven to be a culprit. Your poor central nervous system sounds upregulated and in an uproar, which may be why it's trading off symptoms, one for the other, and back around again. I'm so sorry you are going through such difficulties. You are among folks who understand.

Yes, they do. Have they considered Parkinson's Disease? I am not a dr and this is not a recommendation. Just wondered.